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Trigeminal Neuralgia Message Board
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Old 06-22-2010, 11:08 AM   #1
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vessel close to the trigeminal nerve causing pain?

I am in the Seattle area.....

I have had an MRI and the radiologist reported there is a vessel close to the trigeminal nerve that could be causing the pain. However, I am also being seen by an oral medicine doctor at the University of Washington in Seattle. He does not agree with this finding. He said that my symptoms are not consistant with what a vessel on the nerve would cause. I was put on Gabapentin for a month and it did nothing for my symptoms. In 2001 I had an amalgam filling replaced and the dentist was frustrated at the time because it was a large filling. A few years later I had a root canal as the tooth had always been a little sensitive after the filling was replaced. The root canal
and the crown were placed and I continued to have sensitivity every once in while just as I had before. In September 2009 I started to feel a pressure feeling and it itched around the tooth. It was relieved if I brushed and flossed. The dentist thought maybe I was having a dental allergy and replaced the crown. He said the tissue was very red and suspected a metal allergy. When the crown was removed there was a loud crack. The denist said it broke down kind of far but there was nothing we could do about it. This is when the pain really got bad!! The temporary burned like crazy! I was seen by 2 endodontists one took an xray and said it looked great! The other took an xray and said that the tooth looked like it could be resorbing. This endo took the temporary crown off and said the tissue was very red and inflammed. I saw another specialist who said the distal root was sensitive and needed an endodontist to check it. The endodontist did a retreat root canal and said there was a black ring in the gutta percha in the distal root. After the retreat the pain has continued to be constant. It hurts to chew on that tooth. Especially hard foods like a chip such as gum. I have a constant sting/burn mostly in the distal part of the tooth but sometimes it effects the surrounding tissue.I saw an oral medicine doctor who thought maybe it was a neuralgia or an allergy or a piece of cement stuck in the gum. He noted tissue was bleeding in the distal part of the tooth. All other tissue is healthy! I went to a periodontist who said I needed a crown lengthening. She said the tissue was inflammed around the tooth 4-5 on the perio scale. All other tissue is 2...The crown lengthening was done and still the pain continues...Now the tooth's roots are exposed because during the root canal retreat the endontist clamped the dental damn on the tooth and because there is little tooth structure the damn snapped taking a chunk out of the tissue....The crown lengthening was done causing further root exposer....I have emailed several dentists who all say have the tooth extracted but then there are the doctors who say it could make it worse....HELP!!!

 
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Old 06-22-2010, 02:44 PM   #2
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Re: trigeminal neuropathy - scared !!!!

I'm not convinced either that it's TN. My sister had it and eventually had vascular decompression surgery for it so I am pretty familiar with the issues. The fact that cold air doesn't trigger it would add to that evidence. I think I'd just have the tooth pulled as it seems a lot is wrong with it anyway. If the pain goes away after that then you know what's going on. If not, you're back where you are but don't have to worry about the tooth anymore. Not a good trade off, I admit.

The docs in Seattle that are approved by the facial pain group are:

Marc R. Mayberg, MD, Seattle
Laligam N. Sekhar, MD,FACS, Seattle
Ronald F. Young, MD

Just so you have the names in case....

 
Old 06-22-2010, 06:05 PM   #3
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Re: trigeminal neuropathy - scared !!!!

Thank you so much!! I really appreciate your input!!! I really want to know what the chances are of having it with no triggers...It just hurts all the time...???? I have saved the Dr.'s names for reference if I need or if I need to pass them on...Thanks again!! ox

Last edited by Administrator; 06-24-2010 at 06:33 PM.

 
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