It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Trigeminal Neuralgia Message Board

Anyone have Persistent Idiopathic Facial Pain

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 01-17-2015, 10:01 AM   #16
Join Date: Jan 2015
Location: NY
Posts: 3
tpoppi HB User
Re: Anyone have Persistent Idiopathic Facial Pain

Hi Clarence26 and all others on this forum......

I am very very new to all of this forum. As a matter of fact, you are the first person I have ever written to about anything. I spent so much time researching and this morning I came across this website which made me realize that I am not the only one in the world experiencing these symptoms, and it has a name to go with it!! I also see you are from NY.. so am I. I suffer everyday with face pain, ear, eye, and teeth,,all on my left side of my head. Started after a car accident 2 years ago. Had cervical fussion and laminectomy with no seeing a neurologist for consult and pain management, in a couple of weeks, in NYC. Have you found any relief??
Anyone else, please give me anything you've got ! I could use help.

Last edited by tpoppi; 01-17-2015 at 01:13 PM. Reason: none

Sponsors Lightbulb
Old 01-17-2015, 05:59 PM   #17
Join Date: Jan 2015
Location: NY
Posts: 3
tpoppi HB User
Re: Anyone have Persistent Idiopathic Facial Pain

Originally Posted by Al Dyob View Post
My wife has been finally diagnosed with PIFP (Persistent Idiopathic Facial Pain). It is very similar to Trigeminal Neuralgia. She has episodes of Electrical Pain, along with crushing pain that is consistent except when she is sleeping. Her doctor is now experimenting with a medication they use for gout and another one for High Blood Pressure that does something to stop some channel that causes pain. We are not sure about all of it, but he is at least willing to try a few things. I will tell you she has been through so much horrific pain. Does anyone else out there have anything similar... Would like to hear from you... PIFP as it is called was once known as atypical facial pain. I have a easlier post on here describing her symptoms...Hopefully there is a light at the end of the tunnel. It is a relief just to get a diagnoses instead of hearing how its psycological.
Hi Al Dyob, Today, January 17, 2015, I found this website, searching for answers to my pain very similar to your wife's. Much time has passed for you...have you found any solutions you could share with me??

Old 01-17-2015, 06:04 PM   #18
Join Date: Jan 2015
Location: NY
Posts: 3
tpoppi HB User
Re: Anyone have Persistent Idiopathic Facial Pain

Can anyone give me any advice on what can control this pain?

Last edited by tpoppi; 01-17-2015 at 06:06 PM.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Atypical Facial pain With Stabbing, electrical components as well as TMD Al Dyob Trigeminal Neuralgia 4 01-12-2011 07:11 PM
My neuralgia = constant pins, needles & burn. Anyone else? HopeWanted Trigeminal Neuralgia 6 05-15-2008 07:43 PM
Trigeminal Neuralgia/atypical facial pain questions sunshine2390 Trigeminal Neuralgia 2 08-16-2007 11:42 AM
Facial Neuralgia CBarrett Trigeminal Neuralgia 2 11-21-2005 03:46 PM
Trigeminal Neuralgia, anyone??? liberty72 Trigeminal Neuralgia 2 08-08-2005 07:15 AM
Does anyone else experience NEURALGIA? Ashlyn73 Trigeminal Neuralgia 5 05-01-2005 03:42 PM
Facial Neuralgia - Tegretol or Amitriptyline dale2004 Trigeminal Neuralgia 16 10-19-2004 03:15 AM
Facial/Trigeminal nerve pain Ann123 Trigeminal Neuralgia 12 04-01-2004 05:25 PM
atypical facial neuralgia momofsix Trigeminal Neuralgia 2 11-29-2003 06:14 PM
Occipital Neuralgia- Anyone been diagnosed with it? goodwillstacy Trigeminal Neuralgia 3 04-27-2003 11:09 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:43 PM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2016 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!