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Trigeminal Neuralgia Message Board
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Old 05-04-2011, 06:23 AM   #1
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sixeye HB User
My story, is this tn?

My story starts a week before Christmas, i was walking with my bother down the shop like we always do and then out of the blue it hit me like a rocket. Numbness under my eyes in my sinus area, nausea, tunnel vision, i immediately told my brother to call an ambulance because my ulcer is back. when i was 16 i had a bleeding ulcer which made me collapse on the stairs and felll into my concrete backyard, kinda like when you c a statue fall down forwards, my face hit the concrete and they fix all that up, but anyway back to the story. my brother looked at me and said lets just get some water from the shop. i drank water but it didn't go away, so i rang my dad and he took me to the hospital. the doctors found nothing wrong but while i was lying on the bed i could feel my sinus area under my eyes start to burn like really bad sunburn. i started going though anxiety attacks looking up my symptoms on Google thinking i had all these deadly diseases, it was always worse after eating. i remember lying on my bed watching tv shows with my vision going in and out every 2minutes kinda like looking at a lightbolb for to long. the burning from my sinus area started to go though my arms back, chest and sometimes through my body. i started have panic attacks because the disorientation and pain was just to scary. the doctor could not figure out what it was giving me antibiotics thinking its a sinus infection for about 2 months, he gave me anxiety tables and sent me to a psychiatrist but the pain and the vision problems never went away. my family and friends would make jokes thinking i was making everything up. I started having sharp electric shock pain all over my face specially my jaw, upon waking up my left arm was numb and tingly down to my pinky finger. i stopped going out with my friends because i just couldn't handle the pain and end up having a panic attack. i went into a sever depression thinking of ending my life for hours and hours, lucky i ignored it and just laid in my bed. the scariest symptom i get is the high symptom its like 11pm and your body thinks its lunch time outside plus everything is bright. my ambulance bills where stacking up. i prayed for the first time in my life and no this isnt about how god saved me and for everybody to go to church. . i was at my mums birthday party and i starting having a feeling of detachment like nothing was real. i know what you thinking right now "that's anxiety" well yes your are right but i already new what it was because i looked it up so it didn't freak me out, i had the numbness/burning in my sinuses and the vision problems plus the detached feeling. i decided to focus on the symptoms rather than just freak out and let my anxiety take over, its hard to focus on symptoms and the ones that anxiety causes. i finally got my anxiety and panic attacks under control .I realized that the crazy symptoms im having arnt going to kill me. i started going out with friends ignoring there jokes and just let the symptoms happen, i worked out that sitting in my room with the light off sitting on my pc, not talking, not eating, no sound i would feel better except for the electric shock in my face from time to time. i seen about 4 psychiatrist, dentist, tmj specialist, chiropractor, ent spec, clinical psychiatrist, rheumatologist, neurologist.

psychiatrist found nothing just gave me all the tablets under the sun.
dentist found nothing.
tmj specialist said its tmj.
chiropractor said its a muscle in the back of my neck hitting nerves.
rheumatologist found nothing.
neurologist seen me for 10 seconds and said im fine(didn't check anything)

its been nearly 2 years with no diagnosis. i feel a tingle in my nose or my chin and i go to scratch it then the numbness/burning vision problems flare up, even the birds set it off or flashing camera. my sister want to get a bird but i told her not to because i would end up killing it. its just so hard living in pain everyday and acting like there nothing wrong, not telling anybody because they think im crazy. Through my depression i would think a lot about the world to distract myself from the pain i wrote things on twitter. i still dont really know what they all mean.

my tests.
mri - normal
ct scat x4 - normal
heart monitor - normal
i have stomach hernia which i take nexiem.

My anxiety and panic are no more i just have the pain everyday and a little depression from time to time.
symptoms...

- electric shock that shoots through my hole face at random times through the day.
- numbness in sinus area turns into burning.
vision problems, floaters moving spots in my eyes, lines in my vision, brightness like a atomic bomb going off.
- burning though my arms, back, chest sometimes trough hole body. feels like ad sunburn.
- the high feeling
- numbness mostly on he left side of my face.
- cracking noises in my left tmj(its not really loud).


ive given up on doctors because they look at me like im nuts.
please if you have an idea of what this might be please reply.

Last edited by sixeye; 05-04-2011 at 06:47 AM. Reason: Please don't post unapproved websites, per Posting Policy. Thanks.

 
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Old 05-04-2011, 06:02 PM   #2
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Join Date: Feb 2011
Location: USA
Posts: 24
KCA82 HB User
Re: My story, is this tn?

Have the physician perform a Magnetic Resonance Angiography with contrast. The contrasted MRA should show any blood vessel problems and/or compression of the Trigeminal Nerve close to the brainstem. MRI is used, more than likely, in that situation to rule out a Tumor or MS. Request an MRA. God Bless

 
Old 05-08-2011, 02:23 AM   #3
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Join Date: May 2011
Location: sydney
Posts: 2
sixeye HB User
Re: My story, is this tn?

thank you KCA82 for replying it means alot to me.

i under that i have TN and also atypical neuralgia witch i haven't been diagnosed yet but it is obvious. i ask the doctor for a MRA but he has no idea what tat is. im seeying a neurologist soon so i will ask him. i still dont understand what te burning is, i have through my arms, chest, back. ive had it a couple of time in the last 8 year through my hole body its was extremely painfull. its very scary with the burning and vision problems at the same time but i just ignore it, witch is hard to ignore pain, im c ing another psychiatrist witch im pretty shore hes gonna say its stress, and just give me tablets.

 
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anxiety, burning, depression, naragia, trigeminal neuralgia



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