Re: Anyone have Trigeminal Neuropathy, Vertigo and possible Perimenopausal?
Hello. I'm quirky perimenopausal for past 3 yrs. I've had cranial neuralgias for past 4 yrs. You've discovered what most of us neuralgia vets already know - diagnosis is hard because although neuro docs hear of it in their training, very few actually KNOW cranial neuralgias, even the 'common' one of trigeminal. Seems that when it doubt, the answer is 'TN'. If you are brushed off again, or see a 'deer in the headlight' look from your neuro, ask for a referral to a subspecialist so you insurance will cover it. Just be sure to not insult his ego. Those guys have earned one, but some are more delicate than others. Who are the subspecialists? Look up doctor janneta who pioneered the surgical intervention technique (he's now retired) and you'll find thread to follow for those that specialize in neuralgias. I have had many darts thrown at the diagnosis board and only by intensive research and refusal to be patronized did I finally get to see a subspecialist that knew off the bat that I had geniculate neuralgia AND trigeminal. Seems that women are inflicted more than men, usually in the 40s, and depending on the cause, our 'change' can make it worse. Why? Well, if the involved nerve(s) are irritated by compression by an artery anything affecting the artery and/or the compression will trigger it. That is by no means the sole reason, but a common one. Some causes are just plain 'unknown'. Mine happened to be head trauma. There are a few support groups out there, facial pain association being one, where you can learn about it from 'vets' and their experiences. Hope this helped and that you know you aren't alone - we aren't the only middlle aged woman inflicted w/ this. my first sign 'happened' (not cause it) at the dentist, too. the dentist was good, and was amazed at the amount of pain that couldn't be controlled. Not too long after, TN became full blown along w/ GN but the 'warnings' had been there awhile. tinnitus and vertigo are in the mixture, too, depending on just where the 'shortcircuit' is. Hope this helps.