Hello, I was told by me GP that I had Trigeminal Neuralgia and Multiple Sclerosis, but after an MRI without contrast, the Neurologist says that I don't have Multiple Sclerosis, but that I do have Trigeminal Neuralgia, but since he didn't use contrast with the MRI, he could not see what was going on, and he still gave me the diagnosis. I asked him how could he give me a diagnosis without further investigation. He said because of the points of pain that I showed him, he could diagnose it based on that.
Besides the Trigeminal Neuralgia pain, I've had shooting nerve pain in the front of my neck on either side, followed with swallowing problems (food getting stuck in my throat and slowly going down), and gastric juices squirting out into my throat, burning my throat. This only happens after the initial shooting pains in the front of my neck.
Yesterday, I had stabbing pain in my right ear, but the pain was much deeper than the Trigeminal Neuralgia.
I generally have the Trigeminal Neuralgia pain on the right side, but occasionally I get it on the left side, but my Neurologist says that I can't get it on both sides; so now he's calling me a liar. The pain usually occurs in my upper and lower jaw, along the gum line (usually by my canine teeth), in front of my ear (where the jaw joins), sometimes above my eye, and tenderness going down my neck, towards the back. This pain has been triggered by sound, chewing, and wind, so I avoid eating on my right side, and if I notice even a twinge of pain on a windy day, I will cover the right side of my face.
I told the Neurologist that the capsacin is helping, but he wanted to put me on Cymbalta, and it made me so tired, that I wasn't able to keep my eyes open or function. I also had pain while on the Cymbalta, so it obviously isn't working for me.
I've used capsaicin cream on my face, and it helps for most of the pain, but I tried capsaicin yesterday for the ear pain, and was unable to get to where the pain was. I even put the capsaicin inside my ear. The pain wasn't as bad as Trigeminal Neuralgia either, but it was enough to want some relief. This morning my ear feels better.
When I have trigeminal Neuralgia attacks, that last for days, I notice that my jaws start clenching, and my tongue clings to the roof of my mouth to stop it from having spasms. I removed all vitamins with magnesium stearate, and the pain decreased, but I don't know if it was just a coincidence.
Recently I broke out in bumps that were extremely itchy, and the GP told me it was caused by stress, so she had me take Allegra, but it isn't working. The Allegra has magnesium stearate, and the pains are getting stronger, and my jaw is becoming more tense.
TMJ has been ruled out, but I still don't understand why so many neurological things are happening in the vicinity of the head and neck.
