New to TN, does anyone get bad headaches from their facial pain?
I am hoping someone that has Trigeminal Neuralgia can give me some insight here. I was diagnosed with this at the end of last week. This has been my experience.
About two weeks ago i was sitting on the couch and was rubbing around my temple on the right side of my face. It felt like I had hit my head - but I knew I didn't, it almost felt like there should be a bruise there. a few days later I asked my husband to look for me. He didn't see anything. Then, a week ago from last Saturday we were in the car and I felt my top lip on the right hand side go numb, exactly like i had been to the dentist and he numbed it. I knew that didn't happen either. than, on Monday my cheek started to hurt,, kind of. It was more of a dull, stabbing, pulsating pain. It then went to my jaw bone. And then, my right eye started to water, it was only my right eye, my left eye was fine. in fact, during this entire experience, my left side of my face has been completely unaffected. In the last few days my right eye has been twitching sometimes and my lip twitches sometimes.
So, getting concerned I went into the walk in clinic I go to sometimes. I had just gotten over strep throat and initially thought this all could be a bad side effect from the antibiotic ( one i had taken before and never had any negative effects from it) they had prescribed me. They thought it wasn't a bad side effect and brought up TN as a possibility. They said they had never seen a case of it, and certainly never diagnosed it, but they thought this could be it. From what i have read since then, i'm surprised they even ever heard of it.
Since then, i have been reading up on this. I plan to go get an MRI and other testing done to rule out some other things. My question is, when people are affected by TN, do you get pretty bad headaches? Or is it the facial pain that is unbearable? or both? Earlier today was the first time I can say my entire head seemed to hurt. The facial pain was only on the right side of my face, but my headache was across the front of my skull it seemed like. the pain was so bad I couldnt' exactly tell where it was coming from or even what kind of pain it was (throbbing, crushing, etc) I just know it hurt and it hurt bad. cold wind seems to make my face very painful. today was the first day I got a horrible headache, it really hurt badly! Im sure i don't have to tell people who suffer from TN how badly it hurt. In the last few days it seems like i won't have much pain for an hour or two and then it comes quick and bad. The right side of my face always hurts except when i sleep and usually when i wake up it feels pretty good, except this morning, this was the first morning i was uncomfortable.
I have also read this can come and go,, where people will have periods of no pain. Do you find this accurate?
I would appreciate hearing about any experiences anyone has had with this.
Thank you so much for any advice or comments