I suffered a bout with shingles in January 2012. In my left eye, forehead and top of head. The pain was agonizing then and it continues to be so severe, it is debilitating. I am taking Lyrica which initially helped a great deal but caused me to gain 22 pounds. I cannot go out in the sun--it trigger an attack of pain that takes my breath away.
Needless to say-- my life has really narrowed. I am very depressed and really see no end in sight. Before this happened, i was an avid swimmer and boater as I am lucky enough to live 5 minutes from a spectacular bay beach. I cannot go to the beach any more. When it is a beautiful sunny day, I am sitting in a dark air conditioned room with an ice pack on my head.
Everyone tells me it would go away--- eventually. Eventually seems like forever. I live in the Northeast and summer is very precious to us.
Does anyone out there have any suggestions for pain/recovery? I am desperate.
I know several people who have had shingles lately - within the last year - and they all took Valtrex for it and had great results. But they started on it on day 2 or so and it does work better when started early on. Lyrica is not an anti-viral so am surprised that's all they gave you. You might talk with your doctor about changing meds.
I also had shingles in March 2012. From the crown of my head, down the entire right side of my face, in my eye, in my nostril and mouth. I am now suffering with PHN which includes TN due to the occular involvement. Since we are in a similar time frame, and you posted awhile back, I am wondering how you are doing. I am still struggling with pain management (Gabepentin and Vicodin for breakthrough). I also have always enjoyed the outdoors, but am now restricted by weather and temperature conditions and my pain level. It is frustrating.
I hope you are feeling better.