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Trigeminal Neuralgia Message Board
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Old 05-18-2013, 09:59 PM   #1
Join Date: May 2013
Posts: 2
4blueydbeauties HB User
Recently diagnosed ~ need advice

My name is Damaskus and I have recently been diagnosed with TN. The attacks have been increasing recently and instead of just the maxofacial section, I'm now getting pain in the lower jaw and around the eye causing twitching. Its really getting to the point where i cant eat anything that requires chewing, it hurts to smile or talk, it hurts to brush my teeth or even just draw a breath through my mouth. both hot and cold will set off attacks as well. Occasionally I'll have pain on the other side of the face, but not nearly as often and Only one side will hurt at a time. I've tried all of the medications, but end up with horrible side effects. I have 4 kids under the age of 7 and need to be able to function. When I talked to the Neuro she said we'd have to review the surgical options. Now I'm terrified and I'm not sure what to do. Are there any other treatments I can try?


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Old 05-19-2013, 05:00 AM   #2
Join Date: Apr 2005
Location: Birmingham, AL
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Titchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB User
Re: Recently diagnosed ~ need advice

Am sorry that you are dealing with this. My sister had TN and had the decompression surgery which worked beautifully for her. She had it done at Presbyterian Hospital in Pittsburgh where the procedure was invented. The facial pain association also has information on the various treatments and their approved physicians.

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Old 05-21-2013, 02:12 PM   #3
Join Date: May 2013
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4blueydbeauties HB User
Thanks! I'll check that info. I got referred to a neurosurgeon today. I didn't really want to have surgery, but I guess this my last option.

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