Try to find out exactly how the doctor is describing your problem when you get the IVP done. I'm interested in finding out if it is the same thing as mine. Good luck...I hated the IVP, mostly because the tech couldn't get the IV in my veins and I was a bloody mess on both arms!
Here's a brief history of my problems:
In 2000 I had a laparoscopy done to figure out why I was having chronic pelvic pain. The gyno found adhesions from my c-sections & tubal ligation so she removed them. I continued to have pain but also started getting up through the night having to urinate, I got a ton of bladder infections, had microscopic blood in my urine, bladder pain, etc. so I went to a Urologist. I had a bunch of tests (Ultrasound, CT Scan, IVP, Retrograde Pyelogram) and these showed I had the duplicated right renal collecting system and a partially duplicated ureter. I finally had a Hydrodistention and Cystoscopy done and this showed I had chronic inflammation in my bladder...Interstitial Cystitis I guess. The Urologist NEVER told me I had this but when I received my copy of the procedure from the hospital, that's what it read. I'm trying to get an appt. with a better specialist but it won't be for awhile.
I kind of go in phases where some nights I'll be getting up to use the bathroom and some nights I sleep through. But I always have the pain/pressure on my bladder all day and when I got to go, I got to go!! I often feel like I'm getting a bladder infection only to be told I don't have one. My right side is what bothers me a lot; never anything on my left. It seems like it's in the area of the appendix but I know it's not that...this has been going on for too long and I don't get fevers. It seems like it's in the area where the duplication is but the Uro said that this defect shouldn't bother me and that it should be better for me!?...but why should I believe him??! I feel at times like I'm not getting all my urine out. And if I stay sitting on the toilet and relax myself, more keeps coming out but only a little at a time.
I also have back pain (the usual bulging discs and other misalignments) and have gone back & forth with trying to figure out if that is what's causing the front to hurt as well. It's so confusing when there's different things going on!! I'm anxious to hear from you. Does any of this sound like what you go through? Let me know when you find out and good luck again! DMS
P.S. I have never been told I have stones...have never seen any either but then I don't know what they look like. The IVP didn't show any but they come & go don't they? Two of my tests said something about fullness and dilatation to the proximal ureter??? Never figured out what that meant. Can you describe the feelings you have when you know you are getting/passing the stones; I'm curious about what that's like. Thanks!
[This message has been edited by DMS (edited 02-11-2003).]