Help & advice needed for my husband please
I am new to this forum and desperate for some help and advice for my 43 year old husband. Last October he had a bladder neck incision, apparently he had a very small bladder neck, he was unable to self catherise, so had a super pupic catheriter fitted for two weeks. Since a child he has suffered from slow urine flow etc.
About four weeks ago he returned to the consultant as he was only able to pass a little urine and had other problems. After ejaculation he was hardly able to pass any urine, and this would go on for a few days.
The specialist thought he had scarring, so decided to have a look, the good news was that there was no scarring, but the bad news was he didnt now what the problem was, so he opened the bladder neck fully and re-fittied a super pubic.
Unhappy with the comments, he saw a specialist from the London Urology hospital who has now said he has distal sphincter spasm and incoordination in the reflex of sphincter relaxation, but felt nothing needed to be done. He advised my hubby to have the super pubic removed and get on with life and accept he would always have significant residuals.
This problem is affecting my hubby's life so much, he will not have the super pubic out as he is unable to pass adequate amounts of urine, and is worried that if stuck in motorway traffic etc he would be unable to pass any, he feels safe having the super pubic.
We are now both very desperate as we do not know what the future holds, he feels that he has no option but to have the super pubic in for life, which is affecting his ability to work, he is getting very depressed, and unhappy with the lack of answers from the specialists.
Please if anyone is or has experienced anything like the above your help would be greatly appreciated. We are also thinking of paying to have pressure flow urodynamics and cystography.
Thank you for reading this long thread.