As far as I know they do not communicate with each other as the urogynaecologist does not even know about me as he passed me onto his other member of his team (one of his registrars) rather than seeing me himself as he did not have time for me. He does not know anything about my problem or what his registrar has done to me (self cathing). That says to me that neither him nor his registrar communicates.
The other thing I found amazing was how his registrar got the measurement of my post void micturition residuel incorrect - He noted it as 30 something mls when actually it measured at 80 something, nearly 90 on the ultrasound device. To me this tells me that perhaps I am best see someone else as this is just awful negligence, though only a small thing, it certainly could have been a life or death sort of thing.
This so called urogynaecologist still has not contacted me which just goes to show how much he really cares after two or so weeks of waiting! A joke.
I am getting depressed and feel alone, as even my family are not really able to do anything. I am the only one that sorts it out. I am just finding it so difficult right now and don't know how I am still sane!
I spend more time on the phone than anything else and it really shouldn't be like this in my opinion. They, if they care for their patients (which my urogynae clearly shows he doesn't), should be doing this.
I've had so many bad experiences with docs and surgeons that I don't really know why I bother as I just keep getting nowhere. It's as if they want me to give up as they think I'm a waste of time and space.
I really cannot cope anymore as I cannot even insert the catheter without wreething in pain. It hurts so much to do it and I'm beginning to think of not bothering with this self catheterising as it is just so painful to do. They didn't even offer numbing cream as they said I don't need it and that I need to feel it! Crikey. I'm just not going to do it anymore and wonder if there is a better alternative than this painful procedure that I have to do on my own every night! It's so horrible as it makes my urethra so sore and tender. I just cannot bring myself to do it anymore. It's ok once it's in but with self cathing I have to take it out again and put it back in again and so on and it is more painful than just leaving one in properly.
My GPs told me to take this medication called Vesicare which is for overactive bladders and I found it made me not be able to go. I do wonder now if these GPs really know what they are doing as when I read the leaflet it said that I should have been tested for any retention like I've got before even being put on them! Next time any doc or surgeon tries to prescribe me something I think I'll just refuse it as they are making me more ill than ever. I stopped taking them without my doctor's consent as I knew what I was doing and that it wasn't the appropriate medicine to be taking without having the proper tests first. I did, after that, come to think I had some form of retention even before the docs knew!
I'm not sure if the BC pill can cause frequency or urgency but I would think maybe it's possible. I'm not on BC but have wondered if this might be a help if it is endometriosis. Medication can have various side effects. The possible side effects are usually listed in the leaflets. Did the urogynaecologist say anything about BC and frequency/urgency?
Endometriosis can cause lower back pain which is why I am considering having a laparascopy to find this out and the fact that I have a family history of endometriosis. I'm surprised my urogynaecologist didn't take this into consideration. He just sort of went onto something else!
Endometriosis can also cause bladder problems such as frequency and urgency, particularly if it is growing on or near the bladder. A laparascopy is a good way to find this out but also a cystoscopy is good for seeing inside the bladder to find out if it has grown actually inside the bladder itself.
I too started with this bladder problem only a couple of days out of the week but then it was constant and now I have it continuously every day and cannot even sleep due to the stabbing pain on the right side of my lower abdomen and bad frequency. It never goes away. I'm just so tired and fatigued I'm beginning to feel ill and cannot concentrate for long anymore.
I am lucky that I am studying from home on one of these distance learning courses at the moment as I know that I will never be able to travel or even go to work with this problem currently, as, like your daughter, I'm in the bathroom most of the time and have to go at least every hour!
I feel sorry for both you and your daughter as it is awful when illness interferes with life and the fact that she is still suffering with such a frustrating illness.
I know how horrible life can be when illness strikes and goes undiagnosed for months or even years as that is what has happened to me and is happening again. I feel like I am going round in circles again and again and again...
I hope you daughter does well in school and that she gets the right help from the urogynaecologist/urologist.
I cannot believe that they didn't bother teaching me how to self cath either but I don't think I'm going to carry on doing it as it's just too painful. I'd rather have one put in properly as it also doesn't let me get any more sleep as I have to keep getting up at least once to do it again in the middle of the night which is extremely inconvenient and painful. I so hate it when these docs say that cathing doesn't hurt and that I won't even feel it. I have to say, I never really believed them!
I have to say it is certainly a gold dust rush to find a competent physician as I have found out all too often. I've gone through loads for different health problems which, sad to say, are still undiagnosed and unresolved.
Hopefully we get lucky and land in the right place at the right time. I totally agree, there has to be answers out there, it's just finding them and the right physician who wants to actually help us.
Many thanks and kind regards.