Re: should i get second opinion?
Niad... My 9 year old daughter has the Mitrofinoff, and I would highly recommend talking to your urologist (or another urologist if your not happy with your current one) about this surgery to see if it's possbily something that would help you in your lifetime if you are faced with lifelong catheterization. It's so easy to cath her, and painfree, which is a huge thing to someone who is forced to catheterize daily.
The Mitrofinoff surgery is very lenghty, and I found it to be a longer healing process than alot of other surgeries. It would consist of fasting for three days prior to admittance to the hospital, being admitted the day before surgery to prep for surgery, and my daughter was in the hospital for 8 days after the surgery. Going home, your Mitrofinoff line would be capped off, which comes out of the belly button, and you would need to flush it once a day until it is ready for use. You would have another catheter coming out of your groin area that would collect the pee in a bag hanging from your leg (they do give you a leg strap) and this goes on for a couple weeks until the Mitrofinoff is healed and ready for use. After that though, the quality of life it gives a person forced to self-cath is amazing. And in the future if you don't need to catheterize anymore, the Mitrofinoff is perfectly safe to live with...it's not neccassarily a life-sentence, unless like my daughter, your bladder is dysfunctional and your kidney function isn't great.
And it's not noticable to anyone who happens to look at your bellybutton, all they see is a normal bellybutton, which truely is something huge for anyone faced with this reality.
It truely is a secret channel, as my daughter's urologist had told us it would be.
Would I get a second opinion if I were you??? Definitely. You shouldn't walk out of your doctors office feeling like you are right now, if you feel he is not looking out for your best interests or isn't showing you all your options... move on. There's hundereds of urologists out there that will show you all your options.
Is the Mitrofinoff right for you?? Find a new urologist and find out... for my daughter it has been heaven sent.
Good luck with everything and I really hope you find the answers your looking for.