Re: vitamin D deficiency. does that explain my symptoms?
Hi all. I just found out my vitamin D is at 13. I have been having severe muscles cramps, muscle weakness plus tiredness plus my ANA test came back positive and I also have most trigger points for fibro. I am seeing a rheumtologist and she has just put me on a very high dose of vitamin D. I haven't started the pills yet but am within the next hour. I'm guessing that all of this is somehow related. Any thoughts? Oh btw autoimmune diseases run in the family. Great huh
Re: vitamin D deficiency. does that explain my symptoms?
I have been fighting my issues for a while now. About 2 1/2 years ago I was running half and full marathons. The last half marathon that I ran I just felt like I did not have any strength. It seemed like it started after I started taking some supplements. I am no longer running or working out. I have gained thirty pounds.
I have been going to my family doctor and a rheumatologist. My family doctor could not find anything. The rheumatologist said that I have a vitamin D deficiency. I did not understand how since I was running outside in sunny florida 35 miles a week. I just found out this week that my iron and testosterone are low as well. The last doctor visit I went to the doctor the doctor said to see him in 3 months. I have felt all along that he is not interested in finding my problem.
I did some searching today and found out that if the iron is low then it is hard to get your vitamin D raised.
I am getting a test done to verify that there is no blood in my stools. Also I am going to have them check my thyroid and liver. I think I am going to buy some more vitamins to help the absorption of Vitamin D and I think I am going to sit out in the sun tomorrow.
I know it is rough for everyone here since I am going through some of the same issues.
I have the following symtoms:
fatigue
muscle weakness, hard to hold my phone to my ear for any length of time.
shortness of breath
depression/anxiety
irritibility
dental issues
muscle pains
muscle twitching
headaches
I tend to sleep all the time
lost sex drive
intestinal pain
my stools are mostly now soft to diarrhea
Re: vitamin D deficiency. does that explain my symptoms?
Hi Hizzy,
I can totally relate to your story,and I'm a guy,who also lives in the South,and I get plenty of sunshine. I went to doctors for three years complaining of severe fatigue,always having my blood work,and scans to come back normal.
I'm one of these people who just knows his body,and knew something just was not right.Finally,I go to a new doctor,and after several blood tests coming back normal,he said he could tell by my eyes,that something was wrong,and that I was fatigued,regardless of what the blood tests revealed.
So, he ran two more blood tests,and found that my vitamin D level was 2,and that my thyroid was also hypo,and in the low range.When he saw the vitamin D level he asked me where I got the strength to walk into his office !
I told him,that I just pushed myself,and I just couldn't give up,even though I felt like it so many days.Most doctors just don't know that much about vitamins,or perhaps some just don't care ?
I'm taking vitamin D ,and iodine for my thyroid. The thyroid is doing better,but,the vitamin D is slow in bringing me back to anywhere I call normal.However I was so low on vitamin D for so long ! At any rate,I had nearly all the symptoms you had,and I'm still moving slower than normal.I too,had to give up my cereal,and soy milk for awhile,as it made me tired with the vitamin D,so,like you I opted for peanut butter,and that works better.
I enjoyed reading your story,and can relate in what you have been through.Just remember,never give up ! I just happened to find the right doctor, after three years of searching,and he doesn't give up either . I feel blessed finding the right doctor,and feel like I'm on the right track in getting back to some kind of normal life . Hang in there,and keep me posted on your progress .
Rickey Backer
Quote:
Originally Posted by hizzy
hi, jen. thanks for all that helpful info! i will definitely try K2 and ezorb! and i am trying to accept this as a lesson in patience...i appreciate you reassuring me that this will just take a while to correct. every night, i go to bed thinking "tomorrow will be the day i feel like myself again," but i guess patience is the key.
i've been amazed at how the doctors i've seen seem so uneducated on most vitamin/mineral deficiencies...my B vitamin levels were checked when my symptoms began, but they were normal, and my PCP didn't even consider any other deficiency issues. once she decided it was a virus, she pretty much told me to put mind over matter, go back to work, and i'd be okay. very frustrating to find out that this is NOT a mind over matter issue! thank goodness my rheumatologist has some education on vitamin D!
Re: vitamin D deficiency. does that explain my symptoms?
Hello,
I wanted to share my experience as well with everyone that has posted and those that will visit this thread looking for information on similar symptoms and that were diagnosed with low vitamin D levels.
Earlier this year, about 6 months ago, I began having joint pains all over my body, dizziness, cloudy thinking, depressive, low energy, tingling in my extremities, muscle aches, joint crackling, and the list goes on as many of you have already listed. With all these symptoms hitting me at once, I didn't know what to think was wrong with me. I went to my primary doctor, which also happens to be a rheumatologist, where he ran many tests, including x-rays, an EGG, and other scans. The only test that came back questionable was vitamin D. Though not as low as others, it came back at 21. The doctor prescribed 50,000IUs per week for 8 weeks. I begin taking the vitamin right away and continued for the 8 weeks. The symptoms slowly and gradually begin to improve -- though I felt like they would never go away given that they would come and go. Now 6 months later I feel much better. I still have some joint aches, primarily in my finger joints, but nothing compared to what I experienced at the beginning. Most of the other symptoms are either completely gone or are so minor that they no longer bother me. Also, other issues / symptoms that I had for years now and would have never guessed they were vitamin d deficiency related are improving. Overall all continues to improve.
I take about 3,000IUs now per day. I also take a multivitamin, calcium, and magnesium.
For anyone that is going through these painful and debilitating symptoms, I'd say to continue taking the vitamin D (and calcium, vitamin K, and magnesium), stay strong, and you will eventually see improvements if you haven't already. It may take time but you will feel better eventually.
Please also come back to these threads and post your experiences once you feel better. Most don't care to revisit the threads after feeling better and I think that is unfair and a disservice to everyone else.
Re: vitamin D deficiency. does that explain my symptoms?
Happy you after are doing better ! I too,am doing much better after being on vitamin D for some time now.I'm now on just 2000 IU a day,and most of my energy has returned.It took some time to get back to a normal level though,so people diagnosed with low D,have to be patient,and have a good diet also.I feel so fortunate I had a competent doctor who was able to diagnose all the symptoms I had in the beginning,and realized it was the low D causing 98% of my problems ! Being low in vitamin D can really do you in,or,at least you feel like you've been hit by a truck that is still dragging you ! Thanks to all the people on this forum,and don't give up hope !
Re: vitamin D deficiency. does that explain my symptoms?
{DELETED} this is my email id in case you can help me some how please if you read this msg help me out i am 23 old guy and i have almost same symtoms....please if you r cured, help me..........please help me out. i am a 23 old guy.i am vitamin d deficient.
i consulted a remhuetologist 4 months ago as my knees were clicking and iwas having pain in my legs and after many tests it was dignosed
that i am vitamin d deficient ...........
i took vitamin d supplements for about 2 months but as my doctors was away for his holidays i discontinued the supplements and since then my condition is getting worse, i can feel my muscles are geting weaker day by day i have pain in various parts on my body ,i always feel tired ,fatigue,my digestive system has gotton weak some how..................................... .........
just tell me which specialst should i concern now ,an endocrinologist(coz i think i have hormonal disbalaces) or a rehmuetologist................... please help me please i cant concertrate on my studies anymore
please any info any help might help me
Last edited by Mod-S4; 11-23-2012 at 11:34 PM.
Reason: No email addresses.
Re: vitamin D deficiency. does that explain my symptoms?
Hi Rickey7, I just came across your post... My husband has been progressively getting worse over the last several years (fatigue, muscle aches, migraines, low immunity, weight gain, lack of interest/ambition, very low libido, etc., etc...) Anyhow, I noticed you live in New Orleans (we are on the Northshore), and as you know from your own experience it is very difficult to find a doctor who will actually listen and take an interest in what you are saying. So, I was wondering if I could get the name of the doctor you are seeing. I recently got a clue as to what might be going on (I ordered a testosterone test from one of those do-it-yourself clinics...it was LOW), and I do not want to go back to the doctor he had been seeing. Any suggestions would be greatly appreciated!!! I've read that Vit. D is necessary for hormone production, so I am wondering if that might be part of the problem...
Thanks!!
Re: vitamin D deficiency. does that explain my symptoms? 
Re: vitamin D deficiency. does that explain my symptoms? 
