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Old 04-20-2013, 04:01 PM   #1
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Diagnosed w/Vit. D deficiency and

Mononucleosis, so I'm vitamin D deficient and the number is severly low at 9. Mono has been going on for almost two months now and the doctors don't know why my fevers won't go away so I'm going to have to see ANOTHER doctor an Infectious disease specialist. My fevers range from 99.6 up to 101.5 and I feel lousy.

I have a clear CBC panel all is well, tested and all these are ruled out:
Lupus
Hep B
Hep C
HIV
RA
sorjen's syndrome

I'v had terrible RA symptoms for six months.

not only do I keep having the fever, but the soft tissues in my neck hurt.

I was thinking why not Myocarditis (causing fevers) since my sister was diagnosed in '99 with cardiomyopathy and therefore the rest of family on my dad's side have died in their 60's... My sister is 63. My dad died age 67. I am 51. I have a flu like feeling in all over my entire body. Please give me any insight that you can.

Last edited by tomatolady; 04-20-2013 at 04:02 PM.

 
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Old 04-23-2013, 07:26 AM   #2
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Re: Diagnosed w/Vit. D deficiency and

I have been very low on Vit D as well and can say from experience that raising it to a normal level helps alleviate a lot of aches and pains! I have to occasionally go on RX Vit D and have to take a daily supplement of it to keep my levels up. Did your Dr's give you any suggestions on how to increase your vitamin levels, at least? As to the fevers, I don't really have anything as that is out of my experience. But have you been check for a fungal type of infection or Lyme?

 
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Old 04-23-2013, 10:12 AM   #3
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Re: Diagnosed w/Vit. D deficiency and

Quote:
Originally Posted by luca689 View Post
I have been very low on Vit D as well and can say from experience that raising it to a normal level helps alleviate a lot of aches and pains! I have to occasionally go on RX Vit D and have to take a daily supplement of it to keep my levels up. Did your Dr's give you any suggestions on how to increase your vitamin levels, at least? As to the fevers, I don't really have anything as that is out of my experience. But have you been check for a fungal type of infection or Lyme?

 
Old 04-23-2013, 10:16 AM   #4
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Re: Diagnosed w/Vit. D deficiency and

TX Luca for the fast reply:

Doc only told me try to get at least 10 min. of sun... Never mentioned anything about nutrition. I crave cheese, and sour cream alot. I cannot believe no one can figure out why I still have fever. I see my disease spec. on Monday. I don't think it's lime's disease though i've never had a tick in me and have never really been in a place where I could've gotton bit by a tick.

How low was your Vit D Def. Number? Mine was 9 that's very low... It's been overcast here in Concord NC and I am unable to get any sun on me yet. 3 going into 4th week on the vit. D 50,000 units only once a week.

 
Old 04-23-2013, 11:12 AM   #5
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Re: Diagnosed w/Vit. D deficiency and

I'm not sure what particular vitamin D level you mean as there are different measurements of it. My last lab tests were for 3, 25-OH Vit Total , 25-OH VIT D2, and 25-OH VIT D3 with a standard range of 30-80 ng/mL for total. I had managed to reach 40 30-80 ng/mL at my last test. But I cannot say much of anything about your level since I don't know which form your test is referring to nor the reference range. Me, I cannot go out in the sun as I am very fair and on medications where I can't be in sunshine as well. I didn't think lyme very likely either but I'm just a patient, so I thought I'd throw it out there. I was told to take vit D3 supplements daily. Do you know your Sed rate or CRP? I hope your specialist can shed more light on things for you. Best wishes!

 
Old 04-24-2013, 06:23 AM   #6
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Re: Diagnosed w/Vit. D deficiency and

Quote:
Originally Posted by luca689 View Post
I'm not sure what particular vitamin D level you mean as there are different measurements of it. My last lab tests were for 3, 25-OH Vit Total , 25-OH VIT D2, and 25-OH VIT D3 with a standard range of 30-80 ng/mL for total. I had managed to reach 40 30-80 ng/mL at my last test. But I cannot say much of anything about your level since I don't know which form your test is referring to nor the reference range. Me, I cannot go out in the sun as I am very fair and on medications where I can't be in sunshine as well. I didn't think lyme very likely either but I'm just a patient, so I thought I'd throw it out there. I was told to take vit D3 supplements daily. Do you know your Sed rate or CRP? I hope your specialist can shed more light on things for you. Best wishes!

 
Old 04-24-2013, 06:25 AM   #7
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Re: Diagnosed w/Vit. D deficiency and

I can't answer too much today, I'm that sick.. Almost feel nauseated.. AUH!!! I can get the test results out right now, but I am sooo sick so I can do that later, but I do recall my sedimentation rate was 47. And at 47 it was the last number in the normal range and after 47 it would be in the abnormal range.

 
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Old 04-24-2013, 10:41 AM   #8
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Re: Diagnosed w/Vit. D deficiency and

I do hope you feel better!

 
Old 07-01-2013, 08:30 PM   #9
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Re: Diagnosed w/Vit. D deficiency and

I do hope you are better. I am just now reading your post. My level is 25 for Vitamin D and I feel rotten so I can't even imagine how you are feeling. I can barely get out of bed. I hope to get this level back up soon. Please let us know how you are. Take care!
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Old 07-01-2013, 08:42 PM   #10
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Re: Diagnosed w/Vit. D deficiency and

I do hope you are better. I am just now reading your post. My level is 25 for Vitamin D and I feel rotten so I can't even imagine how you are feeling. I can barely get out of bed. I hope to get this level back up soon. Please let us know how you are. Take care!
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Old 07-02-2013, 12:53 AM   #11
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Re: Diagnosed w/Vit. D deficiency and

Did your doctor test your iron and B12 levels as well? As mild deficiencies often go together.

Unfortunately mono is normally caused by a virus and you are going to feel poorly for months. However addressing your deficiencies will help you get better quicker.

 
Old 07-18-2013, 04:08 PM   #12
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Re: Diagnosed w/Vit. D deficiency and

Quote:
Originally Posted by tomatolady View Post
Mononucleosis, so I'm vitamin D deficient and the number is severly low at 9. Mono has been going on for almost two months now and the doctors don't know why my fevers won't go away so I'm going to have to see ANOTHER doctor an Infectious disease specialist. My fevers range from 99.6 up to 101.5 and I feel lousy.

I have a clear CBC panel all is well, tested and all these are ruled out:
Lupus
Hep B
Hep C
HIV
RA
sorjen's syndrome

I'v had terrible RA symptoms for six months.

not only do I keep having the fever, but the soft tissues in my neck hurt.

I was thinking why not Myocarditis (causing fevers) since my sister was diagnosed in '99 with cardiomyopathy and therefore the rest of family on my dad's side have died in their 60's... My sister is 63. My dad died age 67. I am 51. I have a flu like feeling in all over my entire body. Please give me any insight that you can.
Tomatolady,
Is the RA symptoms you mention Rheumatoid Arthritis? Muscle aches and pains, especially in the neck, along with low vit d means you are low on magnesium. These two usually go hand in hand. Happened to me. Try taking magnesium citrate with your multivitamin and see if that helps. Magnesium also boosts your immune system.
Hugs!

 
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