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Blitzjade 07-20-2008 09:33 PM

West Nile infection?
 
Hi all,

For the past week I have been suffering from a number of symptoms. I have been having severe headaches (I have never had headaches this painful) that are not aided with advil, neck stiffness, two strands of lymph nodes on the back of my neck are enlarged, and body weakness/muscle fatigue/joint aches.

My doctor gave me a CBC that came back, in his words, completely normal. He gave me Tylenol with codeine for the pain, which generally works, but then I'm just sick from the codeine. My doctor initially believed I was suffering from a mosquito borne illness, but retracted that because I have not suffered from a fever. However, I never have fevers. When I was severely ill with mono, I did not have a fever.

I may not have West Nile, but I do know that my symptoms are unlike anything I have ever experienced in my life. I have an appointment with my doctor on Tuesday morning, and if he attempts to brush this off as just a viral infection, what can I do? I want to see some kind of specialist, so does anyone have any recommendations/advice on how to handle this situation? And any insight into if my symptoms seem to be west nile?

Thanks so much.

skeeterbit07 07-21-2008 01:40 AM

Re: West Nile infection?
 
if your present doctor will not give you the WNV test-find one that will. I was diagnosed with WNV in September 07, but I had to change doctors due to the poor care provided by my first doctors-it seems if they do not know a lot about a subject-they will reject it-stand firm, and GET TESTED!!!!!!!!!!!!!!!

seekfind 02-08-2009 07:07 PM

Re: West Nile infection?
 
West Nile is extremely rare. Most likely it's Lyme Disease.

jmhky 09-29-2009 06:27 AM

Re: West Nile infection?
 
[QUOTE=seekfind;3878904]West Nile is extremely rare. Most likely it's Lyme Disease.[/QUOTE]

The only reason WNV is considered extremely rare by most people is because doctors don't test for it regularly. Most people who get the virus only have minor illness, similar to flu symptoms. The only people who get diagnosed are those who end up with meningitis or encephalitis for an unknown reason. Then if the patient is lucky, the doctor will investigate with further testing, but even then some of them don't even think to test for WNV. It's a lot more common than most realize. I think doctors need to realize this and add testing for it (blood test, not spinal tap) to their algorithms. My daughter had a combination of meningitis/encephalitis when she was 4. We didn't discover it was from the WNV for a couple of months and that's because I researched everything I could and insisted on having her doctor test her for it. She's 6 now and still suffers from a lot of illnesses that I believe are a direct connection to the virus effecting her immune system, nervous system, etc.

seekfind 09-30-2009 06:21 AM

Re: West Nile infection?
 
I was quoting the CDC. I do undertand that it is fairly common but it's just that 99.8% of people have absolutely no symptoms with it.

So it is common but usually not debilitating.

By comparison Lyme disease is the fastest growing infectious disease in the country. The tests are faulty (missing 55% of positives) and extremely debilitating, and yet for some reason is not discussed much, compared with WNV.

Also if one has undiagnosed Lyme disease (because of the faulty testing) they are much more apt (because of a suppressed immune system) to contract WNV.

[QUOTE=jmhky;4088888]The only reason WNV is considered extremely rare by most people is because doctors don't test for it regularly. Most people who get the virus only have minor illness, similar to flu symptoms. The only people who get diagnosed are those who end up with meningitis or encephalitis for an unknown reason. Then if the patient is lucky, the doctor will investigate with further testing, but even then some of them don't even think to test for WNV. It's a lot more common than most realize. I think doctors need to realize this and add testing for it (blood test, not spinal tap) to their algorithms. My daughter had a combination of meningitis/encephalitis when she was 4. We didn't discover it was from the WNV for a couple of months and that's because I researched everything I could and insisted on having her doctor test her for it. She's 6 now and still suffers from a lot of illnesses that I believe are a direct connection to the virus effecting her immune system, nervous system, etc.[/QUOTE]


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