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Old 08-18-2003, 04:23 PM   #1
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Unhappy Anyone else with sporadic bleeding?

I posted this problem about five weeks ago and got some good responses, but no real leads. Since the beginning of July, I have had a total of 8 days when I wasn't bleeding at all. Some days it is heavy and painful and some days it just disappears. There really isn't any "brown" blood in between, it just stops and starts suddenly. I usually bleed more when I am active - hiking, climbing, walking - but sometimes I don't and sometimes I just start in the middle of the night when I would prefer to be sleeping.

I am already taking two Yasmin a day to try to prevent any bleeding. I have been on Yasmin since February and on two a day since April. Oh, and I am 26 with no pregnancies and no man in my life. I can't really wear tampons every day "just in case" and my skin gets tired of always wearing pads. Sometimes, tampons and pads combined aren't enough (my blood usually soaks down the string and out before the tampon is even full) and sometimes a pantyliner is enough. Even if the bleeding was predictable it would be easier. Then, I could at leas show the doctor and I could be prepared.

I saw my doc this afternoon and he said "you're not bleeding now." He seemed really bored and unconcerned, but I tried to get a referral to someone else and none of them thought they could help me. So, as I started typing this message, I felt the flood gates open and my panties were soaked through by the time I got the the bathroom. Of course, it couldn't make it happen to show the doc and now I can't make it stop!!!

I would love to hear from other women with similar problems. Even if you haven't found a diagnosis, it would help to hear other stories. OK, enough whining. Thanks to those of you who read this far.
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Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

 
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Old 08-18-2003, 06:14 PM   #2
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I'd say see another doctor. I'm not familiar with Yasmin, but if it's a birth control pill, breakthrough bleeding is not uncommon. Get another opinion, there's no reason at your age that you should have to put up with that.

 
Old 08-18-2003, 07:19 PM   #3
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I agree that you need to see another doc and it wouldn't even need to be a specialist at this point. Just get in to see any different doc you can be it a GP or a GYN. Once you get that doc to address your problem he will refer you if needed to someone who can help. Call in the morning and make an appointment with someone else.

 
Old 08-18-2003, 07:41 PM   #4
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I saw my primary in July when this doc wouldn't help me. She talked to the GYN, to another family doc, and to a hematologist. She has no idea what is wrong and thought one of them - or all three of them - could come up with something. They all referred back to the guy I saw today - I already had a follow-up pap scheduled.

Yasmin is a birth control - sorry to be unclear. Funny thing about it is the week when I had the least amount of bleeding was the week when I was due for a period and skipped it. That was the first week after about five weeks when I had a few days with no red at all.

I will keep looking for a new doctor. Anyone else know what could be wrong or who I could see for help - none of my small town docs even seem to know of other docs who could help. I am in NM now, but may be moving in a few weeks.
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Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

 
Old 08-18-2003, 08:43 PM   #5
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You should change birth control! that much break through bleeding is NOT normal. Most women do have a little break through bleeding, but it shouldn't last more than a few weeks. If it lasts more than a month, you should change pills ASAP. Why would you take two pills in one day? that would throw your entire pack off track. You should try going on a pill with higher estrogen levels, break through bleeding is more common on lower dose pills, so you should try something higher ASAP.

 
Old 08-18-2003, 09:40 PM   #6
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Sounds like it maybe your birth control. If it doesn't go away you may want to ask for a ultra sound. I have fibroid tumors (benign) that make me spot. They are a headache sometime but not bad enough that I want to do anything about them yet.

 
Old 08-19-2003, 06:52 AM   #7
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Thanks for the quick replies. Maybe I should explain how I got to this point. I hate to give details that throw people off, though. I take two Yasmin a day to create a higher dose pill. I do that under my doctor's supervision. I have taken as many as six a day to stop excessive bleeding. I have several packs open at once and still keep track of the weeks, but the pills are monophasic so it doesn't matter if the packs get mixed up. This seems like one of the best pills because I can have that control and I can increase my dosage at any time. I had bleeding before I started taking pills six years ago and have eventually bled through every pill. (That first bleeding episode was attributed to a ruptured cyst on my ovary, but my ovaries look fine now - perhaps thanks to the bcp's).

It seems like the bleeding is only a symptom of some greater problem and treating it with birth control seems a little blind. There must be a cause that can be treated more effectively, if only some doc would commit to figuring it out.

I also had an ultrasound a few months ago and there was a tiny fibroid at the back of my uterus. No one who has looked at the printouts believes that a fibroid that tiny could cause this much trouble and no one is willing to operate on me at all because I am young and have no children. No DNC, no infusions, no laparoscopy, and lots of talk of the ultimate cure, but no one will even consider that.

My family thinks it would help me to become pregnant. Then, at least the doc would let me have surgery after. Maybe I can become a surrogate...
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Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

 
Old 08-25-2003, 04:12 PM   #8
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dear friend,
not to worry you but this sounds like the same thing im going through right now. im having surgery 27 of august for heavy bleeding when every my body decides too. the dx me with a fibroid tumor in my uterus now im going to an infertility doctor the only way they can dx this problem is with an ultersound i had a pelvic one and a vaginal one. i also complained of some abdominal pain with this? i hope this can be of some help to you. I would go to another doctor try an ob gyn.

 
Old 08-25-2003, 06:23 PM   #9
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Hi Shewendy,

I hate to say it, but I envy anyone who can convince a doctor to cut on them. There is only one set of clinics in my town and all of the docs have reviewed my chart. No one has any suggestions and I haven't been able to get a referral to the closest city (two hours away). I hope to get a new job soon that will take me closer to a ne team of doctors.

I did have a vaginal ultrasound during an episode of heavy bleeding. The doc didn't believe I was bleeding and didn't bother looking before he stuck the probe in. About ten minutes into the exam, I had dripped blood through the protective pad they had put down and onto his floor. The probe also hurt a lot. Perhaps that is because I have a retroverted uterus.

Anyway, he found one small fibroid the size of a nickel near the top of the back of my uterus. No one who has seen it thinks it could cause that much bleeding. To stop the bleeding, he had me take one bcp every four hours until it slowed and then back down to four pills, then three and now I take two.

I was anemic before the bleeding started so one of my docs thinks that the anemia could cause the bleeding. Who really knows.

I take two pills a day and I wonder if my body would respond better if I took them both at the same time. I take them twelve hours apart, but I remember in college that I learned that our circadian rhythms are about 23 hours and are reset by the sun. Perhaps I shoudl take both at once.

Good luck with your surgery and thanks for letting me know I am not alone. What other interventions have you had and what kind of surgery are you having?
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Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

 
Old 08-25-2003, 08:37 PM   #10
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Panik,
It is terrible news that you have been bleeding this long without so much as an idea of what could be causing it. Noone should have to put up with excessive bleeding, and no doctor should deny you the right to investigate into this concern.
And it is a concern! Losing this much blood will cause you to be anaemic, and could potentially cause other problems in the future.

I bled constantly for 2 weeks once; I'm on the pill, and realised that the reason for my bleeding was that I had taken 2 packs continuously (no placebos), and when I started spotting one day I ignored it, expecting it to just go away. Needless to say, spotting does not usually stop AT ALL when it has started, when taking packs back-to-back, and eventually I stopped hormone taking for my 7-day break, and voila...I had a period and it was over.

Perhaps you could consider doing this? Stopping your hormone tablets ALL TOGETHER for a proper period? Or even go beyond the 7-day break, and just stop taking the pill altogether, until you can get a doctor to examine you.

As you said before - it sounds like there could be an underlying problem, and the pill is treating (however ineffectively) a condition that neither you nor the doctors can identify without a thorough examination.
Don't put up with it!!!

Best of luck..

Tyger

 
Old 08-25-2003, 08:44 PM   #11
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Hey again Panik,
Sorry, I just read your reply to me on the other post where I pretty much mapped out my bleeding experience to you already. You told me that you've tried my suggestion with no luck... Sorry to repeat myself.
But I still say...YOU NEED AN EXAMINATION!!!
Good good good luck, and I hope the bleeding slows down!
Try to keep your head up

Let us know how you're going.

Tyger.

 
Old 08-26-2003, 07:42 AM   #12
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Hi Tyger,

Thanks for the encouraging words. I feel like I have tried everything and I can't find a doctor who thinks they can pursue my problems. My current gyn doesn't see it as a problem since my bleeding stops and starts and he hasn't seen it in a few months. He told my mom that I should have two kids and then he could fix me. Of course, I have been bleeding off and on since February which makes it tough to date!

I wonder if there is something rare wrong with me and that is why no one can fix me. This is what we have tried: Already treating the anemia and maintaining a decent blood level with daily iron replacement in addition to an iron-rich, healthy diet. Basically, the iron seems to make up for the blood that I am now losing, but I was anemic before the bleeding really got bad.

I have gained about ten pounds in the last year between my broken leg and being sent to bed to stop the bleeding. I weigh about 116 lbs now. Could the added weight be causing a horomone fluctuation? I know that the body uses fat to synthesize estrogen. It's tough to exercise when I almost always see red when I do. It seems like a sign not to do it when it makes me bleed more. Plus, even though the anemia has improved, I am still really short of breath.

I have changed pills several times, but it only seems to last about eight months before I start to break through. My doc thinks my bleeding will eventually stop altogether if I keep taking extra pills, but it hasn't happened yet. The last time I took the 7-day placebo break, the bleeding lasted four weeks. It started to slow when I would have been due for another break. Since that fifth week, I have had about two days without blood followed by a day or two of spotting or all-out bleeding.

I have that little fibroid, but the doctors think that it is both insignificant and inoperable because of the location and my age. Supposedly, the standard treatment is birth control. Everything else inside looks fine, but my uterus is tipped back. My cervix is still showing abnormalities post-LEEP, but he hopes my immune system will fix it. I don't feel healthy enough to fix anything.

What else? This is a really long recap, but I still hope there may be one woman or friend out there who can recommend something else. I can't imagine what tha could be, but I am hopeful.
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Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

 
Old 08-27-2003, 12:03 PM   #13
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Well I am not sure if I should be scared now or wait for a few more weeks. I have been having the sporadic bleeding - starting at the beginning of this month (august 2003). It started out normal. My periods have always been regular (always on time and usually for the same amount of days). I started my "normal" period on the 3rd of this month (my first wedding anniversary - doesn't that stink!) It lasted for 4-5 days with a med/heavy flow (normal). Then a week later it was back for another three days with major cramping. I couldn't sit nor stand, it had me in tears. Yesterday it had yet returned with some mild discomfort. Now - I am not on any birth control. As a matter of fact my husband and I have been trying to concieve for almost three months now and it is starting to become depressing. We already have one 3yr. old who is perfectly healthy. I appologize that I have no answers as to what this is or how to fix it but I hope we do soon. If you have any information - or figure out what it is, please let me know.

I would appreciate it!
Melissa

[This message has been edited by BugsMom (edited 08-27-2003).]

 
Old 08-27-2003, 03:21 PM   #14
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Hi Melissa,

Thanks for the reply. I would pursue all of the leads other posters have mentioned. A vaginal ultrasound is a good place to start to check out your uterus and your ovaries. Maybe even a pregnanacy test for you. I know bleeding is supposed to mean that you aren't pregnant, but it can also mean the opposite. I am guessing you are probably right in the middle of your child-bearing years like me. For very young women and women close to menopause, this kind of bleeding is normal. For women our age, it can be exacerbated by stress and I think fibroids is the second one docs look to. According to my doc, a pregnancy is a cure or a lead for a cure.

I just got home - my first day out in weeks. I think I am rambling a little too much. See your doc and get things checked out.

Nik
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Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

 
Old 08-29-2003, 08:42 AM   #15
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Ugh! I got a list of doctors from my insurance and started calling. No one can see me until October! I guess that's one of the perils of being a woman in a rural state. All the docs are busy with pregnant moms. No offense to those of you brave women who do it, but the docs here just don't specialize in dealing with anything other than pregnancy and it looks like it will be impossible to get any help unless I can find a sperm donor! Ha. Well, thanks for reading.
__________________
Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

 
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