Andenomyosis Question? - Women's Health Message Board

FairyMagick · 11-13-2005, 12:01 AM

Hello, how is Andenomyosis dignoised? If anyone has any info on Andenomyosis, I would much apperciate it. I have Endo and suspect Andenomyosis also. But I have no info about it. Such as treatment etc.

tweets15 · 11-13-2005, 02:26 PM

Hey Fairymagick,

I had a myomectomy in August (a couple months after yours) and my doctor told me that the lab reports said that I had some adenomyosis attached to the fibroids that they checked for cancer.

I am pretty sure I read somewhere on the internet that the only way that they can detect for sure that it is adenomyosis is by removal and looking at the tissue under a microscope. Maybe you could call your doctor and ask if there was any sign of adenomyosis in the samples of the fibroids they checked. Thats how I found out I had that also. I never had any pain or anything. What are your symptoms that make you believe you have it?

Tweets

djl · 11-13-2005, 05:16 PM

Hi fairymagic

I had Adenomyosis. I also had a hyst due to the adenomyosis and other things.

About 9 years ago I had an MRI due to back pain. They did find a herniated disc, but my back doctor was more concerned over the fact that it showed my Uteris was enlarged with a possible mass. I have read recently that if an MRI show this it is possibly determined to be Adenomyosis.
You can also have a Lap done to check the Uteris. I had one done with a D&C and it showed Enlarged Uteris that was Boggey, amongst other problems they found. An Enlarged boggey uteris is also a possiblity of Adenomyosis or Fibroids.
they only way to TRULY dx Adenomyosis, is to have the Uteris removed and sent to pathology.
I had a hyst on May 9th 2005. They took everything out but my Cervix. My doc said after my surgery that my Uteris was a mess. It looked like it went through 2 or 3 C-Sections. I NEVER had a C-Section. He also said it was HUGE !!!!!!!!! Since it was so big and damaged he knew what Pathology would come back with. Pathology did test it positive Adenomyosis.
Adenomyosis is one of the MOST damiging diseases of the Uteris. It is VERY painful. It is also called Internal Endometriosis. It works the same way. The problem with Adenomyosis is that it is deep inside the Uteris and much harder to control. At least with Endo you can have a Lap done and hopefuly have the Endo removed. You cant when you hane Adeno.
You treat it pretty much as Endo. You can try the BC Pill, you can also try Lupron. You will most deffinately end up having to take a Anti-Inflamitory or pain killer for the menstral pain. Adeno cause severe menstral pain. And as like Endo it can go all month if it is real bad.
My simptoms were:
Since the age 13:
Severe painful periods (doubling over pain and in bed for almost 3 days in pain)
Heavy Bleeding
Clotting
Nausea and Vomiting during period at times also I would be very pale
back and leg pain during period
I don't know if this part has anything to due with Adeno but :
From the time I was 22:
I still suffered from all of the above and then
developed severe ovulation pain
sometime during the ovulation pain my stomache would swell so much I looked pregnant.

I am 39 years old now and when I had my lap they found:
Enlarged Boggey Uteris
Adesions
Rupttured Ovarian Cysts
Severe Pelvic Congestion
Regarding the Ovarian Cysts...that goes hand in hand with my severe ovulation pain that I used to have. They think I was popping cysts left to right during that time.
I continued doing this along with the Adenomyosis until I had my Hyst.
Adenomyosis can be difficult to deal with and also to DX.
I would deffinately talk to your doc about options.
Good Luck
and any questions please ask !!

FairyMagick · 11-13-2005, 10:23 PM

Hi Ladies,
Tweets I remember you from before

My symptoms are pain almost every day of the month. If I am lucky I get a few days with little to no pain. The pain ranges from moderate to serve. I feel tried all the time. My back hurts some of the time. I also get ovulation pain and leg pain, all of this even after the Lap and myocetomy.
My doctor seems to think the surgeries I had should have cured the pain. He removed a large fibroid, some cysts and lazered the Endo.
One of the worst pains I get seems to come from my uterus. That's why I think because I have no pain relief after the surgeries, I may have Andenomyosis. Funny thing is I remember right after my surgery on a follow up apt, I saw my chart and it looked like it said Andenomyosis. I was thinking hey they miss spelled Endo. Crazy I know, but I didn't think much of it at the time, and I'm not sure if what I saw was something else. My doctor seemed to be carrying and competent. And after the surgeries he boosted to my mother and boyfriend I shouldn't have anymore problems and if anything was going to grow back it would take 20 years. He also told me whilst I was in hospital I could start ttc after 4 weeks, and told me I would have no troubles getting pregnant. I have read other wise. But now He takes a lacks attitude with giving me pain management and meds. I have starting to consider having my uterus removed and questioned him about this. And he said it wouldn't necessary help me. I haven't had any children yet. But the pain I have is starting to take a toll on me and I need something done. Even If I can get pregnant I would be left with this pain after the baby is born. I would need something done then too. And tcc isn't so easy when I have pain!
Thank you guys for responding to my post sorry its so long. Djl how have you been sense your hyst? Has any of your pain returned? I guess I should call the office and ask about the Andenomyosis but I hate calling there now I always feel depressed after calling.

djl · 11-14-2005, 11:16 AM

Hi Farymagic
I had my hyst 6 months ago, and NO the pain has not returned !! Thank God !!
Of coarse I am dealing with hot fkashes and night sweats. I am on HRT. My GP thinks I am also dealing with Anxiety Attacks caused by the Menopause so I do have to see my OB again on the 29th. I don't think the HRT is working good enough for me. It is probably not strong enough.