wow -- Rose! 7 years is a long time -- good for you for hanging in there!
Now that you have an answer -- you can do some general searches for a couple of things. Search "vulvodynia", and search on any drugs that have been prescribed, too.
You can do a general google or yahoo search, or you can use some of the major websites listed on [url]www.diagKNOWsis.org[/url] -- there are links to dozens of them there.
A couple of guidelines -- make sure if you do a general search that the information is not sponsored by one specific doctor, or one specific drug -- that kind of information is suspect.
Also -- look for variations of your specific diagnosis. There might be others that have similar symptoms, and just because you finally have one answer doesn't mean it's the right one!
In my own case, I was diagnosed with cancer, and then figured out that what I really had wasn't cancer at all, but it was VERY close in nature. In the case of the cancer, I was supposed to be dead within months. Well -- that was more than a year ago, and I am just fine -- and never had treatment. Maybe you'll be able to find out that what you have is treatable afterall.
Good luck. I hope your research turns up lots of treatable possibilities for you.