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So frustrated!

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Old 04-05-2007, 09:41 AM   #1
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So frustrated!

Ok I am very frustrated. I've posted on here a few times and here I am posting again, I feel kind of stupid but I really need to get frustrations out and maybe some advice.

Feb. 19 I had a Laparoscopy, which on top of Endometriosis they found out my appendix was enlarged and didn't look good so I also had an Appendectomy. I've read on here that the first one or two periods after a surgery may be a bit bad... my last one was heavier than normal and the cramps were about the same, a little worse because my muscles were sore. No problem, I dealt with it, it was annoying and frustrating but I dealt with it because I read on here that other woman have gone through it, it's normal.

I got my second period after the surgery yesterday. Now, I'm used to having cramps so badly that I can't stand or sit, i have to just lay down and find a comfortable position. I've had very painful periods since I started puberty. This time... yesterday was almost unbearable. I've never been to the point at work where I almost pass out from cramps. I have never been in that much pain from my cramps where I literally almost pass out. What made it all the worse is yesterday at work our District Manager came in. Though the day was full of compliments for all my hard work, physically I could barely stand up! I had pain in my abdomen but that wasn't what was causing me to feel like I was going to pass out, it was the pain in my back! I have NEVER had pain in my lower back with a period, NEVER. Is this because I had a spinal tap two days after my surgery? And if so wouldn't I have gotten the pain in my back last time, too?

Pretty much nothing will take away my cramps, i've been using motrin for years and the past year or so it doesn't do anything really, it'll take the cramps away for maybe an hour, which I may add, is better than nothing, but still. And having no car, I can't always get to a doctor or a hospital if need be, I actually walk a mile and a half to and/or from work. I had to walk home from work last night. On top of that my boyfriend knew I didn't feel good but still wanted me to pick up the place, and actually had the nerve to call me lazy when he got home from work and I was laying down. After I had done the dishes, and picked up the room, bathroom and kitchen... Does Endometriosis seriously make you feel like this all time? Even after they've burned it off? I am at my wits end, I want kids so badly it's been my dream, but I don't feel like I can handle the pain of my periods anymore. I've tried the exercising, meditating, baths, showers, heating pads, hot towels on my stomach, hot blankets, i've even tried birthing positions just to get the weight off my abdomen/hips. I'm not even pregnant! I'm 19 and have the rest of my life ahead of me, is the Endometriosis and Cervical Dysplasia going to cause me to be in this much pain all the time? I thought the surgery was supposed to make this go away.... The other thing that's kind of funny -- i'm on birth control. And it's not helping my cramps at all anymore. I've started to get cramps a week before my period, just as painful as the ones I get when I actually have it. Should I ask to be switched to a different birth control? I've heard that Seasonale or those kinds of bc are best for treating Endo, but will having a period once every three months make my periods even more painful? I don't know what to do! I am trying so hard to just get through this. I'm only my second day of my cycle and i'm having pains from my period in places I haven't before... even (sorry to be so graphic but I have no other way to word it) I am in pain even in the opening of my vagina, my pelvic bone down there, my hips, my lower back, my abdomen.... it's like I have knives in me... I hate to call my doc because i know he'll probably just say to take some motrin and lay down, but that doesn't work... could this be the Endo? I highly doubt it would be because I doubt something can come back that fast. Is it possibly the Dysplasia? Would that even affect my period?

On top of that, i'm pretty sure I have a yeast infection but situations in my life got very tense the night before I was to go to the doctor to get it checked out (it's my first yeast infection and I hate having medicine that goes anywhere but my mouth) well I had to cancel that appointment and the next day I got my period so I have to wait until next week to try to get into the doctor.... could that be part of this too? I don't think it would be but the body is a strange thing sometimes.

Oh please someone help! I feel like i'm freaking out, has ANYONE here experienced this?

I appreciate being able to post my frustrations and let it out but I really would appreciate some advice.

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Old 04-05-2007, 09:47 AM   #2
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Re: So frustrated!

You should not be having this level of pain after your laparoscopy (or anytime come to that). Go to your doctor, you may have an infection or inflammation in your pelvic region. Don't be put off. Extreme pain is there to tell us that there is something wrong. Plant yourself in his office and get treatment. PS Tell the BF to **** off.

Old 04-05-2007, 10:12 AM   #3
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frankiesmom HB User
Re: So frustrated!

If motrin doesn't work for you, then the doctor should give you something stronger. Call him, he will. I'm sure you're not the first woman to have graced his office with problem periods. With what you've gone through, he won't expect motrin to take that kind of pain away. He might tell you to load up on it to give him time to call in a script for you. Also, give yourself time to heal from the surgery, you don't usually see results from that kind of surgery right away.

Old 04-05-2007, 10:30 AM   #4
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Re: So frustrated!

Well, I called my doc and he told me that this amount of pain is not normal and that I need to be seen. Unfortunately I have no car and today is my only day off, and i'm out of town. So that chances of me getting in anywhere that I can afford is slim... I know of one place and my friend is coming over later, maybe she'll take me.

I really appreciate the advice.

Old 04-10-2007, 06:08 AM   #5
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declansmom HB User
Re: So frustrated!

Hi Snowangel1988,
Hang in there! you will get through this. and yes, simply tell the BF to take a hike.....remember, if he is acting this way now, he will be this way when you get married and have never change!!

I too just had a laparoscopy, hysterscopy, ablation and whatever else. I don't recall the name. Today is 6 days post op. they found several adhesions, new and old endo, thick scare tissue inside and outside of my uterus and also thick adhesions on my appendix pulling it up in my stomach area. I have not had the official talk of my results, but this is just what the Dr quickly told my husband and mother. I was to wait two weeks to come in and talk about the next steps. She did mention that she wanted my husband to make the appt to discuss further children (we have one son).

I have not been able to get out of bed still. I feel like i have been hit by a truck and feel just awful. I don't recall ever being this tired and worn out still. The reasons for the procedures for me is opposite of yours. I have not had periods for 11 months now. severe cramps still and bloating, severe back pain, vaginal soreness for no reason and simply feeling like i have severe periods without the flow. Did you experience this too? I am getting pretty worried and dont' want to lay around and be a baby.

I have demanded an appt with my Dr today. I have been having a temp between 99.9 but only to 101. My right side now for the last two days have been sharp pains, dull aches and simply a feeling of achy fullness. I know this should be normal but what about the temps? I too have the awful back aches that bring me right back to bed. For the past three days, i wake up in sweats and my shirt is soaked. this has happened every morning and after naps??!!

I would suggest going back to your Dr asap for a follow up. I am going today for my temp and side aches.

what made them remove your appendix? I am scared they will have to do that. How long was your recovery from that?

Last edited by declansmom; 04-10-2007 at 06:11 AM.

Old 04-10-2007, 10:35 PM   #6
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Re: So frustrated!

Before the surgery I have almost always had painful periods. To the point where I would miss a day or two of school becaue the cramps were so bad. But back then it always seemed to be more in my hip bones rather than the abdomen or back. Now it's just horrible. I am completely dreading my period next month. Even though I am no longer on my period I still have pains and pain in my entire pubic bone. It's so intense that I had to stop what i'm doing.

They took out my appendix because it was enlarged and the blood vessels were abnormal. Pretty much if they hadn't taken it out then I probably would've had to have had it taken out in a month or two anyway.

I have to call the gyno in the morning. Not looking forward to it but the pain just isn't going away. And for me to take anything for the pain, you know it's bad. I hate taking pain medications anymore because I had CDM (Chronic Daily Migraines) for three years. Migraines, almost every single day for three years. It finally went away when I stopped taking all the medications I was on... I am terrified of them coming back so when I start taking pain medications for pain, the pain is really bad.

I will update as soon as I find out anything. Thank you all for the replies : )

Old 04-17-2007, 06:22 AM   #7
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growla HB User
Re: So frustrated!

I would love to know how you got them to the place to do the laproscope. I had two laps done when i was 16 to remove ovarian cysts, I had lapo done in 2004 to remove my appendix which coincinedtally had a carcinoid tumor located near the tip(cancer). removal was the dx. I have had issues ever since. Actually I have had issues since my period arrived. I have been on BCP since i was 16 except when i was pg. I have 2 kids, first one no probs getting pg second one 7 yrs later, tried for yr and half, had one shot tube, tried IVF didnt take got pg 3 months later naturally. After the birth of my last baby my periods were very heavy, and VERY painful. I could hardly get off the bed for the first 2 days. Now i have diareaha for the last 2 ys. I go back and forth from GYN to Gastro and so far the only thing they have found is polyps in my cervix so im supposed to have the procedure to remove those this week. I have been to the ER for pain meds 3 times since Feb. My GYN will only give me motrin which does NOTHING for the pain. I have pain in three different spots, one over where my appendix was, one on left side and one on my lower right back. I went to see the base dr yesterday and he gave me freaking antidepresents!!! Im not freaking crazy or making this pain up!! What do i have to do to make them understand something is not right!!! Please any help you can give!!!


Old 04-23-2007, 02:37 PM   #8
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Re: So frustrated!


I just got back from the doctor. Took me forever to finally get the nerve to go but I went. I do have a yeast infection, which is what I thought but they think it's the endo acting up agian. I just had it burnt off in Feb. and now they're saying it's acting up again... The exam hurt so badly that I cried. He said it was mostly uterin tenderness, possibly because i'm supposed to get my period next week. But he doesn't want me to have my period. So he's putting me on another bc to start at the end of this week and at the end of next month (which would be the end of the pills he gave me) I'm supposed to call him and tell him how I'm feeling. They're even talking about putting me on the shot...

I'm 19... i'm tears right now because I am so sick and tired of literally being sick and tired. I spent the last three years of high school fighting migraines that kept gettting worse, I graduated when no one thought I would, I passed with a 3.5 gpa! Now this... and they're telling me I may never be able to have kids. Now I know that people say well there's adoption, you can try to find a surrogate mother... but what people don't understand is that... after being molested as a child, raped as child, raped as a teenager, abused mentally and emotionally, verbally... after the hypoglycemia, the anorexia, the depression, when no one expected me to really live. When the specialists told me i'd live the rest of my life with migraines every single day, no one expected me to stay alive, they expected i'd kill myself. All I want is to have my own child, have that bond, show people that I can succeed in whatever I do... and I know there are children out there looking for homes, but I want my child to have a life different than mine. To know how things are but not like the way I found out. I am so scared of everything right now. The endo, the dysplasia... the pain... I don't want to live my life like this. I know this is life, this is how things work... but I would seriously just like a break. Just a break... that's all I want.

Just thought i'd update you all.

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