Re: I think I have Cytolytic Vaginosis but my doctor doesn't even know what that is H
A few years ago i swore I had cytolytic vaginosis...but none of my doctors even knew what it was. I decided to douche with baking soda and water....and POOF...it was gone! Normal discharge! I had tears of joy.
Now.....for the past FIVE months, I have gone through an ordeal. First, thought it was yeast. Tried everything from Monostat-7, and 3, Diflucan (2 pills), boric acid (for 14 days), Flagyl (for 7 days), tea tree oil suppositories, acidopilis, garlic, and rePhresh. I was tested for all STDs....negative (well, for any new ones....I was already diagnosed with HSV-2, herpes, a couple of years ago....but that is not causing this!)
The doctor said my cultures were pretty normal....and he said "You have plenty of good bacteria....and I see SOME yeast." So thats when I did the Diflucan and boric acid (and boric acid is a total yeast killer!)
So then I decided that it must be CV! So i did the douching. Then the sitz baths (because I was worried about over-doing it with the douching...because thats SOOO bad and all).
I get some relief....but not completely like I did a few years ago.
As for doctor's to diagnose CV.....good luck. All the gynos I been too have either never heard of it or claim it doesn't exist. I know it does! I had it! I treated it! It went away for over 5 years!
My next course of action is to demand to see a gyno who is a specialist in infectious disease...at UC Davis Med Center (who is supposed to be one of the best hospitals in NorCal, but so far I am giving them a D in the customer service area).
My advice is to do the same at UCLA. Find a specialist....be dramatic and outspoken about your symptoms....and especially about how you know something is wrong...no matter how "normal" your cultures might be.
Good luck and keep me posted. Maybe if you find a cure, it will work for me!