Re: severe endo...now what?
I too was just diagnosed with severe endo. I am just two weeks post op from my lap, hysterscopy, ablation. I had a one week follow up and she explained the endo is on some major organs and blood vessels that most of it was not able to be cut out. One good thing is it has not reached my tubes or ovaries as of yet. Just my bladder, vessels, apprendix and covering my uterus. I also have a lot of scare tissue and thick adhesions. My Dr too made a point that it was a bad case of severe endo. I have one son already....it did take us about a year and a half though. But we did it on our own. My Dr said we need to make our decision in the next few months if we are going to have any more children or be treated with an endocronligist to keep it from spreading to my organs. Another problem i have is i am hypothylamic suppressed so my body is not producing hormones correctly.
I feel clueless and shocked...but releaved after reading info about endo that it is exactly what i experience. Horray, I am NOT crazy!! My Dr gave me percocet to help with pain and it helps alot. I also have cataflam which helps take the edge off. But I do feel like to be happy and pain free (my pain is all the time no matter what time of month) i have to be on drugs.
I am considering a hysterectomy but my Dr and everyone else on this board says it may not be the way to go. So i really need to reach out and learn more about endo.
I am here for you!
As i understand it, this is our life from now on.