I have been diagnosed with adenomyosis, from having had surgery (myomectomy). Originally, based on an ultrasound, I was diagnosed with several fibroids, one abit large and a few smaller ones. Upon doing the surgery my doctor found only one marble sized fibroid, and the rest of what was seen on the ultrasound was adenomyosis. He cleaned out the pockets of old blood, but did not resect that area of my uterus. So essentially, the surgery was worthless, as it only served to remove the one small fibroid which was not the cause of my problems.
This is going to be abit long, so I will make this a brief history. I have been having extremely heavy periods for the last ten or so years. Periods from hell, bleeding so much I couldn't leave the house. The pain came on a few years later than the heavy bleeding, but became so severe that at times I was barely able to move. Every month when I got my period, I could feel my uterus was very enlarged, especially on the right side, and very tender. That is the area where my "focal" adenomyosis is. I went to my OB/GYN originally thinking it was fibroids, and he agreed, and confirmed it with the ultrasound.
He said that I have a "bad uterus", and wanted to do a hysterectomy then, since I am beyond my childbearing years. I refused. I do not want a hysterectomy under any circumstances other than cancer. So first we tried progesterone therapy for six months. That did no good at all. Then he wanted to give me Lupron, to completely shut down all my hormones, but I refused that as well. So I pushed for the myomectomy, in the hopes of saving my uterus. The surgery was worthless, since the diagnoses changed to adenomyosis once he opened me up and saw my uterus. So I went home accepting this problem, and hoping to make it through to menopause to get the relief they say it will bring. I am 50 now.
Something has changed in the last couple of months, and I'm not sure what is the cause of it. My periods have always been very regular, every 28 days. In the last couple of months, I had a couple periods that were two weeks apart. I began to wonder if it is the beginning of menopause. However, a few months ago, I began taking a zinc supplement, for various reasons I won't get into now, but zinc can affect hormones. Zinc is needed to produce testosterone, which men and women both have. So maybe that was what caused the change in my schedule.
But then I started taking Vitamin A and D a few weeks ago for some other problems I was having. This was when things really got weird. I started to get my period again two weeks after the last, with the usual uterine pain only very mild. But oddly, my uterus didn't feel as enlarged and tender as usual, the mild pain lasted only about an hour, and the bleeding which was more like spotting, completely stopped the next day. I then went two more weeks as I should have, and began my next period. This time it started the same, brief mild pain with less enlargement of my uterus, and light bleeding. By day two my bleeding was normal, and there was no pain at all.
I'm now on day four of my period, and am thrilled to say that it has been a huge change this month. Bleeding has been half or less of what is usually is, no pain other than that one twinge the first day, followed by about a half hour of slight tenderness, then gone. I have been palpating my uterus every day, and it has been less and less enlarged, and is not painful to the touch anymore. This is so unusual to be having my period without being aware that I have a uterus, due to the horrible pains of the past that made me constantly aware of it.
So with all that, I did some more research on Vitamin A and I think I have found evidence that a vitamin A deficiency is the likely cause of this problem as well as endometriosis and fibroids. I've been studying health, medicine and nutrition on my own for the last 30 years, and have a good understanding of all the technical jargon used. Based on what I know, and now what I have read regarding vitamin A, I am really curious to find out if it is in fact the cause, or at least part of it. In my case, it could be menopause coming on that is the reason for the change, although I have no symptoms of menopause.
I have a daughter who has endometriosis as well, and she has recently gone on the pill to try to get some relief. I am going to have her try this and see if it helps her. I would also like to see if it helps other women with adenomyosis, since I have four daughters that may someday be plagued with this same horrible condition. Since you are still in your childbearing years and would like to have a baby, I was wondering if you might be interested in trying it as well. If so, I can share the info I have found on it with you, and explain the vitamin supplementation further. This is not something you can do in a willy nilly fashion without understanding the proper forms, amounts and ratios of vitamin A and D to take.
If you talk to your doctor about it, he/she will poo poo it and say it is nonsense, snake oil treatment, and not to do it. Doctors are not trained in nutrition, and don't want to hear about it. They only want to prescribe drugs to treat symptoms, rather than try to find a real cure. So this is something you would have to try of your own accord if you are interested. The choice is up to you, it's your body. I just hate the thought of millions of women giving up their uterus so easily, just because they don't understand how their own bodies work and have to rely on doctors who don't care about us losing our truly wonderful reproductive organs.
Best wishes to you