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Old 06-16-2007, 01:42 PM   #1
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Uterine Septum, Double Cervix, & Vaginal Septum Removal?

My OB/GYN recently noticed something interesting at my last exam. I have two vaginas (longitudinal vaginal septum). I was a little shocked. So was my husband. I've never had any painful intercourse, but I do remember a lot of pain when I first started using tampons. Now I understand why they were always unexplicably "leaking".

Anyway, an ultrasound confirmed either full duplication of the cervix and uterous, or a complete septum). An HSG by my OB/GYN seemed to show it was 2 uteri (AKA Uterine Didolyphus...butchered spelling), but the reproductive endocrinologist doctor who did a 3-D ultrasound said it looks 95% likely to be a septum. I was hoping for the Didolyphus because the R.E. Dr. said that pregnancy to term is generally unhampered, but he says if I don't remove the septum I am at risk for repeated miscarriage, preterm labor, breech birth, cerebral palsy, & more.

The Reproductive endocrinologist has done many removals of septums, but not too many as extensive as mine. He showed us some videos of some of the surgeries he has done. He uses a very hot wire thing, and it was amazing to see the septum basically dissolve into millions of tiny fibrous particles before our eyes when he touched it with the wire. I don't know what this technique is called, but I was wondering if anyone here has had it done, and what their results were.

Along w/ the skill of the surgeon, the make-up of the septum (whether it's more fibrous, or more muscular) really effects the amount of scar tissue after the procedure. Since my septum is so big, I am afraid of the muscular content. I am also a little anxious about the removal of the complete vaginal septum and cervixes, but from what I've read, removing them is recomended. I have read the other threads on septums, but was hoping for some more specifics here. Does anyone have experience with this?

I also have another concern no one seems to talk about: Was sex worse after the surgery? I read a post by a woman at another site who said that it was. I am a woman who (thanks be to God) is very blessed to easily come by "the thrill". I can orgasm just about every time we have sex, and I am worried that the surgery will negatively effect that, although the R.E. Dr. said he couldn't see why it would. Frankly, neither my husband nor I want to lose that ability. If you've had a longitudinal vaginal septum removed, how does sex compare to before? Does anyone have some insight into this?

I sincerely apprecaite any help you may be able to offer.

Last edited by sillyjilly; 06-16-2007 at 01:48 PM. Reason: i want a title that will come up under a "uterine septum"search

 
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Old 06-16-2007, 07:28 PM   #2
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sillyjilly HB User
Re: Remove my Uterine / Cervical / Vaginal Septum?

There is complete duplication all the way down to the opening of the vagina. The reproductive endocrinologist says w/ 95% certainty it is a septum that is complete because he saw no eveidence of bowel or anything in the area between the two cavities. He recomended doing the scope to see how things actually are, and then while he's there, he would remove the septum if need be. From what I've read, diferentiating between Uterine Didelphys and a Complete septum is difficult. During the HSG, there was no transfer of fluid from one side to the other. I guess the key in determing is the very top of the uterous, and looking to see the shape of the fundus (the very top of the uterine area) to try to tell if the cavities are sharing an area, or if they are two uteri. I was considering getting an MRI, so then we would have a better idea of what is there. I guess I'm afraid we'll go thorugh w/ the surgerey, and then when they're in there find out it IS didelphys, and it wouold have been all that trouble for nothing.

 
Old 06-17-2007, 10:17 AM   #3
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Re: Remove my Uterine / Cervical / Vaginal Septum?

Quote:
Originally Posted by sillyjilly View Post
There is complete duplication all the way down to the opening of the vagina. The reproductive endocrinologist says w/ 95% certainty it is a septum that is complete because he saw no eveidence of bowel or anything in the area between the two cavities. He recomended doing the scope to see how things actually are, and then while he's there, he would remove the septum if need be. From what I've read, diferentiating between Uterine Didelphys and a Complete septum is difficult. During the HSG, there was no transfer of fluid from one side to the other. I guess the key in determing is the very top of the uterous, and looking to see the shape of the fundus (the very top of the uterine area) to try to tell if the cavities are sharing an area, or if they are two uteri. I was considering getting an MRI, so then we would have a better idea of what is there. I guess I'm afraid we'll go thorugh w/ the surgerey, and then when they're in there find out it IS didelphys, and it wouold have been all that trouble for nothing.
Hi there
I also have uterus didelphys. My doctors didn't really do as much investiagating as yours though. My doctor discovered it when I was about 20 (I'm 27 now) through a normal pap smear exam (I'd had multiple pap smears before this one, and it was never noticed). Anyhow...once the doctor finally realized there was a problem, I had a pelvic/vaginal ultrasound. This showed the partial vaginal septum and muscular uterine septum, 2 cervices, indicating uterus didelphys. The only other diagnostic test they did was an IVP (intravenous pyelogram), where they injected dye to check to make sure my other organs were normal. I guess with uterus didelphys, a common problem is having only 1 kidney. Luckily, the test showed that I had 2 properly functioning kidneys.

With my case, my Kaiser doctor said that they did not recommend (and basically would not perform) removal of the uterine muscular septum. They said that studies have shown that it's better to leave it in place. I did, however, experience painful intercourse (dyspareunia) due to the partial vaginal septum. Just last week I had the surgery done to remove it. The surgery went well (as far as I know), and I went home the same day. After 1 week, the doc had me start inserting Estrogen cream and using vaginal dilators to help stretch the vagina and decrease the chance of scarring. I have my first post-op appt. on the 22nd, so hopefully I'll have more details then.

Sorry this response probably hasn't been helpful-- I just figured I'd introduce myself and share my story. I'm curious about you though-- when you talk about removing your septum, are you referring to your vagina, uterus, or both? I've heard that didelphys uterus is actually one of the better uterine anomalies to have since the muscular septum holds up to carrying a baby better than a septate, bicornate, or unicornate uterus. I'd really like to know more about your particular situation and what exactly your docs are advising. Thank you so much!!! It's great to hear from other people who have the same very rare condition. Good luck

Last edited by tiggerbuddy; 06-17-2007 at 10:20 AM.

 
Old 06-18-2007, 08:10 PM   #4
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sillyjilly HB User
Re: Remove my Uterine / Cervical / Vaginal Septum?

Quote:
Originally Posted by peachy420 View Post
Hi there
I also have uterus didelphys. My doctors didn't really do as much investiagating as yours though. My doctor discovered it when I was about 20 (I'm 27 now) through a normal pap smear exam (I'd had multiple pap smears before this one, and it was never noticed). Anyhow...once the doctor finally realized there was a problem, I had a pelvic/vaginal ultrasound. This showed the partial vaginal septum and muscular uterine septum, 2 cervices, indicating uterus didelphys. The only other diagnostic test they did was an IVP (intravenous pyelogram), where they injected dye to check to make sure my other organs were normal. I guess with uterus didelphys, a common problem is having only 1 kidney. Luckily, the test showed that I had 2 properly functioning kidneys.

With my case, my Kaiser doctor said that they did not recommend (and basically would not perform) removal of the uterine muscular septum. They said that studies have shown that it's better to leave it in place. I did, however, experience painful intercourse (dyspareunia) due to the partial vaginal septum. Just last week I had the surgery done to remove it. The surgery went well (as far as I know), and I went home the same day. After 1 week, the doc had me start inserting Estrogen cream and using vaginal dilators to help stretch the vagina and decrease the chance of scarring. I have my first post-op appt. on the 22nd, so hopefully I'll have more details then.

Sorry this response probably hasn't been helpful-- I just figured I'd introduce myself and share my story. I'm curious about you though-- when you talk about removing your septum, are you referring to your vagina, uterus, or both? I've heard that didelphys uterus is actually one of the better uterine anomalies to have since the muscular septum holds up to carrying a baby better than a septate, bicornate, or unicornate uterus. I'd really like to know more about your particular situation and what exactly your docs are advising. Thank you so much!!! It's great to hear from other people who have the same very rare condition. Good luck
Hi, Peachy!

Thanks for introducing yourself. I had read some about your situation in another post, and it is nice to bounce things off people in similar situations. How is your recovery feeling? Was any part of your surgery painful?

Even though it looks like I have uterus didelphys, from what the drs said and what I've read, it's difficult to tell. Because of the duplication of the cervix and vagina, it would seem it would be uterus didelphys, but at the 3-D ultrasound, my Repro Endocrinologist said he thought it was a septum that went all the way. He said to be sure they would need to go in and really see, in my case, or do an MRI. I guess I'm wondering if I should try to have the MRI first, or just tell him, "OK, let's do it. Look around in there, and if it's a septum, let's get it gone." I don't know what the septum is made of, but the Re. Endo. seemed to think it would be mostly fibrous, maybe w/ some vascular tissue; But he said he can't really tell until he is looking at it. So, for the surgery, he would look in through 3 holes in my abdomen w/ a scope before he went up the vaginal canals. To answer your question, if it is a septum (not U.D.). he will remove the septum between halves of the uterous, the septum between the vaginas, and I don't know about the cervices, but I know they go, or get combined. I'm not sure, there.

Honestly, I get a little creeped out thinking of them removing part of the cervices. How will that work out? I know he's an amazing surgeon; He works on at least 1 septum correction a month, but I still think I should get a 2nd opinion. I made an appointment this Fri w/ my Primary care physician, and hopefull he'll be able to help me decide what to do next.

You are young, Peachy, and you are fortunate to have U.D. over a septum. I think I still have a latent hope that will be the case for me. I'm no spring chicken...going to be 32 soon. My husband and I got married less than 2 years ago, and haven't tried to have kids yet. We just found out about my condition a few months ago. (I said, "Have I been having sex w/ both of these!?!?!" and my Ob/Gyn said, "yes." News to me... but now that I know I can tell. ) Now for fear of complications we're really not trying until we know what's what.

It's a confusing time, and I struggle with fear. I know God's will will be done in this, even if we can't conceive and don't have our own biological kids. I know He will eventually give us the child/ren we're meant to have. That is comforting. For me, the surgery is scary, though. It's hard to feel commfortable w/ the thoughht of being cut up in there.
You spoke about using dialators. I'm afraid if being "loose", but the dr. didn't seem to think so...But I think in an IVF clinic people are all about babies. I don't even know if he asks the women about that stuff, so I'm hoping some people will respond here.

Anyway, see how I go on and on? It's time for bed!!

G'night!

 
Old 09-16-2007, 04:52 PM   #5
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Re: Uterine Septum, Double Cervix, & Vaginal Septum Removal?

I'm 19 and was just diagnosed with uterian didelphys a month or two ago. Next month I'm scheduled to go to a specialist to see about the removal of my partial vaginal septum. My septum is towards one side, so right now the doctors can only get a pap smear from one side, when they need to be able to get both sides. It looks like I don't have a choice of weather to have this removed or not. I was just wondering if anyone else has had this surgery and what the surgery was like. Was anesthesia used, did they cut into your stomach or just go through your vagina? Was the surgery very painful? The only other surgery I've had is getting my wisdom teeth removed so I'm pretty scared about this one. I'm also curious about the difference this makes in sex if any. My septum isn't causing any problems in this area right now, because it is pretty far up and over to the side, but could this surgery cause a lack of sensitivity therefore causing the sex to not be as good? Any information someone could give me would help a lot. Thanks in advance.

 
Old 09-17-2007, 08:27 AM   #6
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Re: Uterine Septum, Double Cervix, & Vaginal Septum Removal?

Quote:
Originally Posted by ooscaramouche View Post
I'm 19 and was just diagnosed with uterian didelphys a month or two ago. Next month I'm scheduled to go to a specialist to see about the removal of my partial vaginal septum. My septum is towards one side, so right now the doctors can only get a pap smear from one side, when they need to be able to get both sides. It looks like I don't have a choice of weather to have this removed or not. I was just wondering if anyone else has had this surgery and what the surgery was like. Was anesthesia used, did they cut into your stomach or just go through your vagina? Was the surgery very painful? The only other surgery I've had is getting my wisdom teeth removed so I'm pretty scared about this one. I'm also curious about the difference this makes in sex if any. My septum isn't causing any problems in this area right now, because it is pretty far up and over to the side, but could this surgery cause a lack of sensitivity therefore causing the sex to not be as good? Any information someone could give me would help a lot. Thanks in advance.
Hi
Your case sounds a lot like mine. My doctor *finally* noticed my partial vaginal septum when I was about 20. Then they did an ultrasound, and determined I also have UD. After having to deal with painful intercourse, I finally decided to remove the vaginal septum this June (I'm 27). I was under general anaesthia, so I was completely out. During the surgery, I was in stirrups (I've been told!), andthey went right in through my vagina. They removed most of the tissue band, but there is still a little ridge on the top and bottom of my vagina where the band used to be. After surgery, I was in NO PAIN. It was truly amazing. I was a little groggy, but other than that, I think I took 1/2 a Vicodin once, and that was it. My doc said that she wasn't surprised because there aren't many nerve endings in the vagina. My doc had me use vaginal dilators to strech the vagina and keep it formed. I also inserted estrogen cream (Premarin) in my vagina every night to keep the tissue stretchy and decrease the chance of scar tissue formation. After a couple months, I had my second post-op visit. The doc said things were looking good, and that I should either use the dilator, or have sex every night. My boyfriend says that everything seems "normal" and that sex is just as good. There is a slight band of tissue still on the top and bottom, but he says he can't even tell, and if anything, it almost feels better now (sorry for all the details!!!). I'm SO GLAD I had this surgery. It has made a huge difference. Another plus is that I can actually wear tampons now (I used to not be able to because I would leak out the side the tampon wasn't in- weird, huh?). I hope this info helped you! Please feel free to ask any questions Try not to worry!! Good luck

 
Old 10-09-2007, 02:13 PM   #7
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Re: Uterine Septum, Double Cervix, & Vaginal Septum Removal?

Thanks so much for that information. I'm going to the specialist next week to see what they have to say. I'm pretty sure I'll have to have the surgery, but knowing that it might not be very bad is reassuring.

 
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