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Old 02-27-2008, 12:34 PM   #16
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Re: what to expect after cystocele operation

Annette, wow! it sounds like you have been through quite an ordeal !!
Sounds so familiar to me what you went through, very similar to my ex-mother-in-law, she also lost hearing on the one side...of course, it's been a couple of years since she passed away, and the surgery was even longer than that, but she went through so much with that ear surgery also back then....

You've given me so many things to ask the Dr. about, and I am soooo grateful for all of this information, just keep feeling bad that you have been through so much already....definitely am bringing up about what will be used for the cystocele repair...

The thickening he felt he thought, may be due to some diverticulitis I may have?? doesn't have to present itself as a big problem all of the time to have this...or, it could be a tumor, which is why he ordered the vaginal ultrasound, to rule all this out, as he would have to change options the way he wanted to do the surgery , meaning he may have to go through the abdomen...hope not...we'll see...

yeah, sorry about the computer...I do all of this at work (ha ha...) been meaning to buy one just haven't gotten aound to it...will one day soon I hope..

Wishing you a nice day, and thanking you again for all the info...you take care... J.T.

 
Old 02-28-2008, 06:45 AM   #17
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Re: what to expect after cystocele operation

J.T.,

Well, the way I deal with all the issues I have been through is helping someone possibly AVOID the same situation. It does make me feel better to help where I can, so if you must know, the truth is, by helping others, ..in turn helps ME. So it all "washes" in my book...
I will certiantly say a prayer for you reguarding the "thickening" that was found, and that its an EASY fix!
Have you asked the Doc about recovery time? How long does he expect with the requirments of your job...More importantly how long I HAVE TO WAIT...before I find out how you made out!..ha ha

Take care and God bless,
Annette

P.S. Reguarding your x mother-in-law....Do you know if her Skull EVER fused back together? Mine still hasnt, and its been since June, still cant lay down to sleep. And have NEW vision issues also. She is the first person I have ever heard had had this surgery.

 
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Old 02-28-2008, 01:04 PM   #18
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Re: what to expect after cystocele operation

Annette, your plate is certainly full! ... but I guess that's what makes you such a beautiful person, helping others the way you do...your boys are so lucky to have a mom like you!! you sound awesome!!

You have a good evening...take care.....J.T.

 
Old 03-05-2008, 07:30 AM   #19
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Re: what to expect after cystocele operation

J.T.,

How you holding up?

Just checking up on you. I wish you were seeing the Doctor before Friday to give me an update before the surgery. Just know I will definetly say a prayer for you and be thinking about you. I wish you the best, and will be waiting for your return! I'm sure all will go well, sounds like the Doctor is on the ball, and doing all the testing you need before going forward.


Take care, and GOd bless,
Annette

 
Old 03-06-2008, 06:30 AM   #20
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Re: what to expect after cystocele operation

Annette, well, things have changed a bit...they changed my surgery for the following Monday, the 17th, instead of the 10th...I was supposed to go in for most of my testing tomorrow, but they cancelled some of it, as the Dr. will not be in on the 7th as planned ...anyway, I insisted on having the ultrasound tomorrow as planned...I know they won't tell me much, as they want my Dr. to talk with me, (he was supposed to be there to see the results the day of the ultrasound) but at least I should have the results by Tuesday....they were trying to make me wait until next week for all of these tests. (his scheduling nurse called me and this "thickening" he referred to me the fist time, she refers to as a "mass" in my abdomen, needless to say, I was pretty upset.....if something comes up that is not good, say in the colon (if the ultrasound can read that) then I am putting off the surgery and having this taken care of first, as that would be the most important issue...I won't know until the results are in next week though....anyway, I will also do all of that preadmission stuff tomorrow, such as the paperwork, ekg, bloodwork, chest x-ray etc....next Friday, I go for the urodynamic testing and my consultation with him if all goes well...thanks so much for your concern, and for your prayers.......J.T.

 
Old 03-06-2008, 08:55 AM   #21
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Re: what to expect after cystocele operation

J.T.,
You know, I HATE IT when Doctors don't give you the WHOLE story! This is WHY I research so much, and get copies of my actual records so I KNOW EXACTLY what is going on with ME! I told you that the surgeon who did the surgery on my head had not given me the ENTIRE story. Well he was what I would call a "Sugar Coater" not giving ALL the information! He was the Doctor who had ordered my CHEST CT scan cause "something" showed up in my Pre-op x-ray. Well I went and had the CT done, and when I returned to him all he told me was " you have a little spot on you lung", and "they recomend follow-up CT in three months". Well I TRUSTED him, and didnt get the copy of the CT scan. Well, the more I thought about it, I called over there (300 miles away from home) and asked them to SEND me a copy of the report. Well after SEVERAL calls, weeks went by, and FINALLY AFTER I had surgery, I got a copy of the CT. And found I had 2 nodules on both lungs, emphysema, scattered larger bullae(blisters) on my lungs! I was ANGRY to say the least, because I WOULDNT have had surgery on my head, until THAT was addressed! So that was a lesson learned. That NOT all Doctors will disclose EVERYTHING!
Do you "Want" to know what the report said? If so, I highly recomend you go and get a copy of the actual report, that way you CAN be your OWN ADVOCATE! You cant be an advocate unless you have ALL the facts.
I'm So sorry your going through this!
I want to add something to maybe give you some sort of peace of mind...
I had a renal ultrasound last year for kidney pain I had been having. In that ultrasound there was a "3cm complex cyst" found on my right ovary. My primary care freaked, and said I would have to have it removed. I got an appt with the Top GYN/ONC at Mayo clinic for a second opinion. He did a "internal ultra sound" and found that it was a "funcitional cyst" being that it was several harmless cysts that come and go with ovulation but had "appeared" like a complex cyst on the renal ultra sound. Also even with the inturnal ultrasound they could NOT find my Left ovary, and he thought that perhaps they had removed it when I had my hysterectomy. I told him I KNOW they DIDNT remove it, I had my records. Well long story short, he recomended a repeat ultrasound in 6 months just to be sure. And low and behold, the cysts on my right ovary were just about gone, BUT my previously "missing" LEFT ovary, had shown back up, with 2 "functional cysts" on that one as well. Inturnal ultrasounds are more accurate in that case.
"TRY" not to read TOO much into this, until you have ALL the facts. I know its hard, but theres a saying I like to refer to..."Just because you Hear Hoof beats, dosent necessarly mean its a "Horse", It just MAY be a "ZEBRA"! I have learned that I appear to be a ZEBRA with SPOTS on MANY occations!

Take care my friend, try not to worry, and please if you need to vent, by ALL MEANS Im here! Prayers continuing!

God bless,
Annette

 
Old 03-06-2008, 10:53 AM   #22
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Re: what to expect after cystocele operation

Annette, thank you for replying so quickly...yeah, this hasn't been a "fun" couple of days for me.....and thank you for telling me that I can obtain my Dr.'s report on all of this ... I never would of thought of it myself...
I am going in there tomorrow as I said, for the internal ultrasound and I will definitely request it ...
whew! I can't believe what you have been through already!! wow!!...thank you though, for your knowledge in all of this...it does help me, it really does...

I guess what I don't understand, is back in January, when he first felt this "thickening" and what must be down on the report as a "mass", why wouldn't he have urged me to have an ultrasound immediatley?? wouldn't that have made sense?? wish I would of thought of that question when I spoke with him the other day, but of course I didn't think of it until that night...

I did ask him the other day when the scheduling nurse called me at work to let me know about the cancelling of appts. and surgery for different days, etc..(I said I needed to talk to the Dr. regarding this)
why it's being called a "mass" now?? he said well, he likes to think of it as more of a "swelling"...most of the times it isn't anything, he sees this alot, but then again there could be a malignancy...oh swell, that made me feel sooo much better!!!...anyway, I called this morning to the office and spoke with the nurse again, and asked when I could expect the Dr. to look over this ultrasound, and she said by Tuesday of next week...so I will call and ask to speak with him before I go through any more appointments and tests...

I feels as I kind of found a "friend" in you...thank you so much for your support...appreciate all your input and prayers!!
I will not be here tomorrow, but will be here all next week, except for Friday, on......God Bless....J.T.

 
Old 03-06-2008, 12:07 PM   #23
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Re: what to expect after cystocele operation

J.T.,

Yes I would have thought he would have urged you to have an inturnal ultrasound at that point. What kind of Doctor is he, cant remember if you had told me. Uro/GYN, GYN, or URO?
I hope you get a copy of your record tomorrow, and I would make sure when getting a copy, ask specificly for a copy of the actual ultra sound also, that way you will know EXACTLY what the radiologist has seen , Not your Doctors impression OF THE radiology report.

Try to have a good weekend. Will be checking up on you Next week to see how things went.

I'm glad I can help at least listen. Having someone to vent to, can mean the world when facing something you havent before. I have found myself in your situation many times for various medical woo's and have found MANY terrific friends (online friends) that have been my sole support. I talk with people from Scotland, Canada, and MANY states in the United states, so I DO understand what you mean. You sound like a wonderful person as well, and just want you to know your NOT alone!

Take Care, and GOd bless,
Annette

 
Old 03-06-2008, 01:33 PM   #24
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Re: what to expect after cystocele operation

Annette, he is a Uro-Gyn...and I will ask for a copy of the actual ultrasound...I wonder if they will give me a hard time about this?? Do you think they can give it to me right away, or is it something that I will have to wait for??
That's awesome you have met so many people all around the world...that's awesome....Thank you again for your concern and support...
You have a good weekend also......J.T.

 
Old 03-06-2008, 01:46 PM   #25
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Re: what to expect after cystocele operation

J.T.,
They shouldnt give you a hard time at all after all they are YOUR records, and they should be able to give it to you right then. Although they may feed you a line about once you sign a release, it MAY take 48 hours to obtain.
My primary cares office will give them to me right there, and my neuro's office IF I DONT have an appt where I can actually ask the Doctor for copies(because she will give them to me right there) will have me come in and sign a release, then call me when they are ready.
Either way if he was the Doctor that ordered the ultra sound to begin with they HAVE TO give them to you.
It's become a bit more difficult getting records because of the new "HYYPA laws" you have to get the records from the doctors that ordered the tests or their personal reports. GOne are the days when you could go to your primary care and get any records, and gone are the days that your doctor can send another doctor YOUR records without YOU FIRST signing a release allowing them to do so. Just takes a bit more work.

Wish you the best,
God bless and take care,
Annette

 
Old 03-06-2008, 02:04 PM   #26
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Re: what to expect after cystocele operation

Annette....ok got it!! thanks so much...on my way out....thanks again!
take care .......J.T.

 
Old 03-10-2008, 05:55 AM   #27
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Re: what to expect after cystocele operation

J.T.,

Were you were able to obtain your Ultrasound report Friday? Hope to hear from you soon.

Take care and God bless,
Annette

 
Old 03-10-2008, 06:34 AM   #28
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Re: what to expect after cystocele operation

Annette, didn't have a very good weekend....oh, in answer to your question, they said they would mail it to me...
anyway, the radiologist said he was "very concerned" for me... You shouldn't even be able to see my ovaries since I have been post menopausal for quite some time...he couldn't even see my left one at all, but the right one is very large, very large with some smaller tumors or cysts below it...he said this needs to come out NOW...well, I told him Monday I would be going into surgery (17th)..he also asked me if I had had a "biopsy" a short while ago, and I said no, I never had..well, he sees some fluid leaking also, so that can't be good either...my let side is clear as well as the uterus though....meanwhile, I am trying to get in to see an ocologist for a second opinion, that specializes in this field to see me, or review this ultrasound also, so we can see what order things need to be done here...which priority is first here...they didn't say malignant, but I pretty much think so...I should be hearing from the Clinic in about 24 hours, which would make it later today or in the morning...I will be talking to my Dr. also, (who also is from the clinic) as I was told to talk to him on Tuesday, but will try for today I think...that's all I know for now, will let you know more as I find out....J.T.

 
Old 03-10-2008, 12:32 PM   #29
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Re: what to expect after cystocele operation

J.T.,

I'm glad to hear your going for a second opinion to a GYN/ONC. I did that same thing with the cysts I had. Begnin cysts on the ovaries can rupture or leak also. I'm not going to say try not to worry, because I know thats near to impossible in your situation. BUT remember one thing I had told you before, "Not everything is what is seems" all the time, My case in point.
I learned a lesson being told I had lung cancer, then finding out it wasnt cancer after all, So "TRY" not to worry, until you have ALL the facts. Wait and see what the Oncologist has to say. You mentioned "clinic" is this a major medical facility your going to?
I will continue prayers for you, just know Im thinking about you, and giving you hugs from afar.
Hope you can get into oncologist soon, please let me know how you make out. I'm here for you if you need to vent.

Take care my friend,
God bless,
Annette

 
Old 03-11-2008, 05:46 AM   #30
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Re: what to expect after cystocele operation

Annette, sorry it has taken me so long to reply...I had to leave early after being here for just an hour or so, just couldn't stay...am okay now....
My Uro-Gyn called me while he was on the road yesterday, and said he looked at the ultrasounds and prompt action needs to be taken...well, I already knew that...anyway, he is trying to get an oncologist to be there with him during surgery, a specialist in this field....so, now, looks like appointments are being changed again, I will know by today, as I already talked to the scheduling nurse this morning, and she should be calling me back sometime today, most likely early....
Yes, the Cleveland Clinic is a major health facility in Cleveland, the hospital I was supposed to go to originally, was Hillcrest, which is an affiliate of Cleveland Clinic.....
Thank you for your kind words of support, it helps me drastically...I'm much better today....will let you know what I hear....Your friend, J.T.

 
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