Yep I'll be going without any meds. My symptoms stop with my period. Do yours?
Good luck with the terazol. I have heard it has worked before. Let me know if it does.
The med that many people get cured from glabrata with is something called flucyosine (sp?). The brand name of this is ancobon, and it is made by a compounding pharmacy. They crush the pills into a vaginal cream of some sort.
Why hasn't your gyn tried that yet?
What is the mycology culture? Just wondering...I will definitley be doing another culture...but I am not satisfied with the 5 day ones.
Right before my period is worse. I read that there is a hormonal component so...that makes it worse.
The mycology is the test that runs for a month.
The gyn is trying different things...I see her in a bit and will talk to her about more terazol. From what I get, it isn't so common the glabrata and mostly like trial and error.
Are you feelign any better?
Alexis
Quote:
Originally Posted by stacy918
Yep I'll be going without any meds. My symptoms stop with my period. Do yours?
Good luck with the terazol. I have heard it has worked before. Let me know if it does.
The med that many people get cured from glabrata with is something called flucyosine (sp?). The brand name of this is ancobon, and it is made by a compounding pharmacy. They crush the pills into a vaginal cream of some sort.
Why hasn't your gyn tried that yet?
What is the mycology culture? Just wondering...I will definitley be doing another culture...but I am not satisfied with the 5 day ones.
I just thought I would come and update. I have been doing the yeast cleanse diet for 1.5 months now, plus the oil of oregano and 2 candida cleanse kits, and I did a monistat 3 day kit recently (which never worked for me before)
And for the first time in 4 years I have no symptoms...No itching at all. I have tried many creams over the last 4 years (even some of the ones named here) and nothing worked, finally I guess it was the combination of everything I have done...I will not go back to my usual diet but I have added some stuff back in.
I really recommend trying this...I never thought I would get rid of this...I will update again to let you know if I get any symptoms back.
Oh and I forgot to mention I have been tested over and over again for yeast by different doctors and they always said this was not a yeast infection...but apparently it was.
Last edited by misty073; 10-21-2008 at 12:56 AM.
Reason: added info
I just thought I would come and update. I have been doing the yeast cleanse diet for 1.5 months now, plus the oil of oregano and 2 candida cleanse kits, and I did a monistat 3 day kit recently (which never worked for me before)
And for the first time in 4 years I have no symptoms...No itching at all. I have tried many creams over the last 4 years (even some of the ones named here) and nothing worked, finally I guess it was the combination of everything I have done...I will not go back to my usual diet but I have added some stuff back in.
I really recommend trying this...I never thought I would get rid of this...I will update again to let you know if I get any symptoms back.
Oh and I forgot to mention I have been tested over and over again for yeast by different doctors and they always said this was not a yeast infection...but apparently it was.
Hey girls!
Misty I am very happy for you. I keep saying that about myself...one day all of this stuff I am doing will "click". I am also doing an anti yeast cleanse, with the oil or oregano, and I will be doing a liver flush next weekend.
Misty, I also cannot get a positive yeast culture back. However, I know it is yeast because it is the same symptoms I had summer of 2007 when it was yeast. My symptoms are not itching though. Only burning.
Alexis, I feel ok for the time being because I just got over my period. The burning stops during my period. Then it comes back with a vengenance. Alexis what are your symptoms...more like mine, right?
I talked to a doctor by my dad's in Baltimore and he said yeast can take from 30-40 days to culture out! I think this is why I am getting negative cultures.
Well...some itching, some burning, some irritation/inflammation type of feeling. Very little discharge.
Alexis
Quote:
Originally Posted by stacy918
Hey girls!
Misty I am very happy for you. I keep saying that about myself...one day all of this stuff I am doing will "click". I am also doing an anti yeast cleanse, with the oil or oregano, and I will be doing a liver flush next weekend.
Misty, I also cannot get a positive yeast culture back. However, I know it is yeast because it is the same symptoms I had summer of 2007 when it was yeast. My symptoms are not itching though. Only burning.
Alexis, I feel ok for the time being because I just got over my period. The burning stops during my period. Then it comes back with a vengenance. Alexis what are your symptoms...more like mine, right?
I talked to a doctor by my dad's in Baltimore and he said yeast can take from 30-40 days to culture out! I think this is why I am getting negative cultures.
Hi Alexis and the other girls! How are you all feeling? Have been doing the boric acid for two weeks, and I have responded. I wonder if I should continue with the boric acid? Does anyone know if boric acid cures or just suppresses yeast?
Alexis how is it going? What are you on now? How is the terazol going?
Continuing with terazol. Hoping extending it will make a differnce, since it seems like the only thing so far that helps.
I read or heard that boric acid isn't like the antifungals in how it works...that is changes the ph level so that the yeast is unable to survive and so eventually just die off. So its not like it is suppressing them.
I am glad the boric acid is working. This is the first time you have used it right? I haven't tried it.
Alexis,
Hey how are you. No I used boric acid in summer of 2007 with my last infection. It helped but it did not clear things up. Maybe it is because my fiancee and I had just gotten together at the time and we were having sex quite a bit when I was on it. Maybe it didn't stay in me enough to work.
Do you hear about people getting completely cured on boric acid?
How long have you been on the terazol now? Still helping?
How long was it until you felt relief on the terazol?
Still on the terazol. This is week two. I thought it was helping till yesterday. I don't know if the new turn of events is becuase I am about to get my period. Very frustrating.
How are you doing on the boric acid?
Oh and I have heard of people getting cured on the boric acid. Plus there are studies online that show that it is successful for glabrata for like between 70-95% of the patients.
Alexis
Last edited by alexis1234; 11-05-2008 at 10:04 AM.
Alexis that sucks.
So do you feel right back where you began when you first started terazol?
Has your doc said to stay on the terazol at the same time while doing something oral as well.
I am still on boric acid. Only a few more days until I will have reached my 28 days.
I feel as if the burn may be coming back.
If this doesn't work I don't know what I will do. Its gonna be a sucky holiday season....
Alexis guess what?
My burn is back! A week before my period now as well.
I am depressed.
This is so frustrating.
Are we going to have to live with this.
Alexis,
I have my period now so my symptoms completely disappear. It is odd you say you are having other testing done , I have been thinking the exact same thing. My only symptom is extreme vulvar burning. Have you had all of your hormones checked? Bloodwork and all? More than just the thyroid, you know. I have heard estrogen or lack of it can cause symptoms like this. What is going on with you? How are you feeling?
I know you get worse with your period but do you ever get any total symptom relief. Have you had a biopsy? I have heard if it gets into your tissue it can be really hard to get rid of....a cream will never do it. Let me know.
Yeah, my hormones were out of whack and so I am on bcp. That has regulated me so that the cysts that I get here and there are shrinking. that provides extra estrogen. Other bloodwork is fine. thyroid is fine. no diabetes.
I never get total symptom relief, no unfortunately.
My doc says she suspected bv, so I am treating for that now. The irritation may be better, but the itching is way worse.
Tell me something when you use the boric acid and you say that it burns/itches externally, how do you get the boric acid to help there? does is permeate the skin or how does it help there? I am thinking about that since boric acid helps glabrata and bv.
Boric acid has never burned me. Buy size 00 empty capsules, and fill them with boric acid. Try it 2 times a day for 14 days, see if you respond.
Have you ever talked to a Dr. Marjorie Crandall? She is a yeast expert and scientist. I was led to her from a vulvodynia website I was on. I consulted with her over the phone and she believes I have the type of yeast that has grown into the tissue, since I never culture out, but based on my history. Look her up and see if she can help you. She was very helpful to me.
Apparently I have had this glabrata yeast for 11 yrs now until last year diagnosis. However the doctors treated me on short term basis with diflucan and terazol. I contiinue to have bad itching as well as all over my body. Yes i got it from man who did not seem to care anything. Does anyone know a doctor who specializes in this type of candida and anyone who has been cured using boric acid suppositores and diclfucan on a long term basis such as six months? I heard it is resistant to azole meds which is what diflucan is.
I have tried most of everything and nothings seems to work. Why isnt there more information for women so that they cna be aware of this yeast.
I believe its in the deeper layers of my skin hence the constant itching all over.
If you are suffering from burning try Lotrisone. It took away my burning after one week of using it. You can't imagine the relief I had after a year and half of constant burning on vulva. However the itching still continued. I am hoping the boric acid suppository works. Also I read that flucytosine pills crushed and made into an oinment is helpful and even cured some women of glabrata. If there is anyone out there that has been cured using flucytosine ointment on the external vulvar, please let us know.
The only way to know is sharing information and letting the docs know when we visit them so that they can help us along the way.
What state do you live in?
Boric acid will help a lot. Buy a product called yeast arrest on the internet...
it will help but you have to use for longer than 14 days.
Go to vulvodynia websites and look for their specialists. There are docs who specialize in this...Dr. Glazer in NYC, Dr. Susan Kellogg Spadt in Philly.
Also look up Dr. Marjorie Crandall and do a phone consult with her. It has helped me tremendously.
When you cultured for glabrata how long did your culture take to grow?
Where do get lotrisone?
Diflucan and terazol need to be used longer for glabrata. I have heard of a woman who used diflucan for six months straight.
Re: Glabrata yeast 
