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Old 02-06-2010, 08:43 PM   #1
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mystery (vaginal?) infection--help!

For the last 13 months I have been dealing with some kind of infection. I had a severe UTI back in January of 09 and that seemed to start things off. It was the first I ever had in my life. I was put on cipro for a week but kept going back to the doctor because I continued to have pain with insertion, pelvic + low back pain and a white pasty discharge that had a sour smelling odor. I was told I had BV and was put on several rounds of different medications; nothing worked. I saw a gynecologist who said I had cervicitis and proceeded to treat me with more antibiotics until deciding to do 2 cryosurgeries. Again, no relief from my symptoms. I was bounced back and forth between doctors. Some saying BV, others saying yeast or a combo of both, 15+ medications. However, NONE of my cultures grew ANYTHING out at all. No yeast, no bacteria (aerobic or anaerobic) nothing at all. I was blood tested for some STDs and well as cultured for gonorrhea and chlamydia-all normal. I also had a normal pap smear. once in a while a dr. would say they saw a few 'clue cells' but nothing else. In addition, what really has my doctors baffled, is that my vaginal pH is normal and has been the entire time. Every test that has ever been done has come back normal, but something is obviously wrong and these symptoms will not go away. I have avoided sex since this started back in January of 09.

I eat tons of yogurt and drink nasty probiotic kefir and nothing is giving me any relief. I am very healthy aside from this issue, I have Celiac Disease, but no other known issues. I went to an allergist thinking maybe I was having a reaction, but again, everything came back normal. They even drew blood to double check and my ige and sed rates were both normal. I use hypoallergenic soaps and laundry detergent, do not take baths or douche and only wear cotton underwear.

Is it possible for a culture not to grow anything out, but to have a bacterial infection? My doctors are absolutely baffled. I recently finished a 2 month course of steroids because they thought maybe it was auto-immune, but they only made it worse. Every time I am on antibiotics, my discharge increases and my pain worsens. I am at my wit's end. I am 21 years old and this mystery infection has been ruining my life. It has taken a toll on my relationship with my boyfriend and I am constantly depressed. I am just sick of being in pain and having this disgusting discharge. I am getting desperate for guidance with what to do. I don't understand how this hit me like a truck out of no where and won't go away. I have never had these symptoms subside at all which is the really frustrating part. My doctor said that infections usually come in waves where it will go away but reoccur shortly after. My problem has never gone away or been improved. It hasn't gotten much worse, but it certainly hasn't gotten any better.

Has anyone ever experienced something like this or have ideas on how to get rid of it? Does it just sound like a very drug resistant BV infection or PID or anything at all?! Any information or advice would be greatly appreciated. I thank anyone that took the time to read this

 
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Old 02-08-2010, 03:03 PM   #2
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Exclamation Re: mystery (vaginal?) infection--help!

I felt I was in a similar situation as you. I would go to my general practitioner and explain my symptoms, I would get a pap-smear and be told everything is in my head. This drove me absolutely crazy because there was an odor and discharge. Then finally I was referred to a specialist where I was diagnosed with two-three species of non-albican yeast . You can imagine I was really ticked off because here I am second guessing myself and wondering if I really am imagining my symptoms, but of course I was not.

I really do believe if you go to the right doctor, you should get some conclusive results. Maybe you haven't been seen by the right doctor. A lot of the time, it really is just a case of not being thorough enough. I must've had five or more pap-smears done and nothing came up simply because it just didn't click that I may not have had bacterial infection or a typical candida yeast infection. I also was prescribed Diflucan and Metrogel and none of those medications worked because I was mis-diagnosed. This is like a running theme. A lot of women have similar stories.

Last edited by moderator2; 02-08-2010 at 04:28 PM. Reason: needless quoting - please try using the Quick Reply button instead of the Quote Reply button

 
Old 02-08-2010, 11:32 PM   #3
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Re: mystery (vaginal?) infection--help!

Thanks for a response. The domino effect really is terrible. One thing goes wrong and it's just an uphill battle from there to get it back to normal.

As far as seeing the right doctor, I've seen about 4 different gynecologists and the last one referred me to a vulvar disorder specialist that works at a state medical school. She didn't know where else to send me and I guess people with mystery things going on are sent to this clinic. I've been seeing him for a while, but no improvement. I wouldn't even know what other kind of doctor to seek (infectious disease? or a urologist? do they even deal with lady parts?) and he is the best gyno I'm going to find. I have no idea what kind of tests to suggest he do. I've been reading tons of different things on the internet but i'm atypical for most things I'm coming across. I don't know what else they can do besides cultures. Can blood tests show something those wouldn't or my urine or something? Idk of any random virus that can cause this but that's the only other thing I've been able to come up with and idk how I could be tested for that.

My doctor wants to do a vaginal biopsy next month. I just don't want to go through more pain if it'll just come back normal like the rest. It is terrifying to have something so annoying and painful, not go away after all these antibiotics and surgical procedures that they keep saying will work. How do I know they aren't missing something serious and by the time they find it, it'll be too late

Ahhh, I need a drink, but I can't because I'm still on pointless medications! @_@

Also, sorry for the flood of questions lol. Just trying to take everyone's experiences with being misdiagnosed, having random, chronic or drug resistant problems to figure out what they did and what my next step should be.

 
Old 02-09-2010, 09:33 PM   #4
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Re: mystery (vaginal?) infection--help!

I have SO much sympathy for you...you have no idea.

First of all, you are NOT alone. I'm in an almost identical situation to you and I have been for two years now. I've been treated for everything--yeast, bacteria, cervicitis, pH imbalance--over and over and nothing's ever worked.

I was recently diagnosed with dysplasia (which is determined through a biopsy, like you said your doctor was mentioning), and at my next appt. will find out if I need to have surgery to treat it. The thing is, it's not really supposed to have symptoms. My doctor seems convinced though, so we'll see...

I also quit taking my birth control a couple months ago (had been on it 6 years) and the severity of my symptoms lessened for a few weeks but now they're flaring back up again BIG time so I'm starting to think that had nothing to do with it...

Anyway, I really hope your upcoming appointments give you SOME kind of an answer. I literally have tried everything, and I know exactly how frustrated you must be!!!

 
Old 02-11-2010, 05:36 PM   #5
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Re: mystery (vaginal?) infection--help!

Pinkrobot, I am sorry to hear that you have been dealing with a similar problem for so long as well! It sure is hard to continue to try and keep a positive attitude when nothing helps. I am trying my best to remain hopeful that this will be figured out soon. I, too, initially thought maybe it had something to do with my birth control pills so I immediately stopped taking them. I have been off of them for 9 or 10 months now and have noticed 0 difference, as you said.

Have you tried probiotics? I have been reading on the internet and a lot of women swear by this... they say to buy plain yogurt, put it on a tampon (and I think freeze it maybe?) and to insert it for an hour or two a day for a week or two. Apparently it has had a pretty high success rate for getting rid of both yeast and BV. I am thinking about trying this, once I clear it with my doctor. I can't see it doing any harm since the Lactobaccilus acidophilus (good bacteria) would be getting where it needs to be in order to help fend off bad bacteria and help fight whatever infection this could be. At the same time, yuck, I sure don't like the sound of putting yogurt up in my girly bits. I've been eating tons of yogurt for the same idea, but I haven't noticed it helping much. There might just not be enough bacteria in yogurt and I'm sure not all of it would reach where I need it to be by traveling through my GI tract.

If you haven't tried it, I'll let you know how it goes. It'd be pretty silly if yogurt inserted vaginally fixes this, but hey, never know!

 
Old 02-11-2010, 07:27 PM   #6
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Re: mystery (vaginal?) infection--help!

Amelillo, I have actually gone the probiotic route before and found it didn't make a bit of difference. Actually, I can give you a quick rundown of EVERYTHING I've tried from day one:

-Antifungal meds
-Antibiotics (doxycycline, flagyl, clindamycin)
-Boric acid
-pH balancing gel
-Probiotics (acidophilus, rheuteri, threelac)
-Candida diet, along with an expensive candida cleanse treatment
-Hydrogen peroxide douching
-Aldara cream (this was for the dysplasia)
-Steroid cream
-Desitin cream

Throughout the past two years I've been convinced that at least one of those things just had to work...and unfortunately...here I am, still fighting the same old battle.

If you do find anything that helps you at all, please do share! Like you, I'm trying to keep a positive attitude about this and remind myself that eventually, SOMETHING will have to work.

 
Old 02-11-2010, 07:49 PM   #7
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Re: mystery (vaginal?) infection--help!

You should try probiotics specifically for vaginal health such as Fem-Dophilus or RePhresh Pro-B. These probiotics are clinically proven to work. It's a good idea to try taking it in conjunction with medications to replenish lost bacteria. Regular acidophilus supplements won't work since they don't normally colonize the vaginal tract.

 
Old 02-12-2010, 12:20 AM   #8
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amelillo13 HB User
Re: mystery (vaginal?) infection--help!

Pink, was this infection brought on by anything for you, was it a UTI like me, or did it occur out of no where?

 
Old 02-12-2010, 06:23 AM   #9
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Re: mystery (vaginal?) infection--help!

Hey Girlie,

I had the SAME THING! I had Cronic Yeast Infections and other types of issues dealing with the Vag..but try Acidodulphis (spell check) its organic and its a Yogurt in a pill. Its has over a Billion pro-biotics that you need for a healthy track. TRUST ME! It help in many ways. You can buy Acidodulphis at Target or any store. Its only 3.99 and it WORKS!!!!!Take it every day..And Represh helps too..use that after sex and after your period and that will balance out your PH. Ive been through the same thing for a year now.

 
Old 02-12-2010, 10:57 AM   #10
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amelillo13 HB User
Re: mystery (vaginal?) infection--help!

Swt and Bella, thank you for the suggestions. Definitely going to try this next. The Cipro I was on a year ago is what started this all, so maybe it just devastated my good bacteria and they haven't had a chance to recover since I've been on constant meds since. Going to the drug store today to pick some up, wish me luck!

 
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Old 02-12-2010, 04:57 PM   #11
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Re: mystery (vaginal?) infection--help!

Quote:
Originally Posted by amelillo13 View Post
Pink, was this infection brought on by anything for you, was it a UTI like me, or did it occur out of no where?
It started out of nowhere.

 
Old 02-18-2010, 11:37 AM   #12
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amelillo13 HB User
Re: mystery (vaginal?) infection--help!

So...I started taking some RepHresh Pro-B tablets a few days ago as some suggested. Unfortunately, my aunt flow decided to come visit early, so I have no updates on whether or not it is/was helping. I'm going to use some of that RepHresh pH gel stuff after this goes away, even though it's supposedly normal and hopefully it'll help these probiotics get the job done.

Anyway, I'll be sure to update and let you guys know if this stuff works. I might have messed it up because I bought the tablets from the store unrefrigerated (so pricey!) but I was always under the assumption that you have to refrigerate acidophilus, so I stuck it in the fridge...the label didn't say to, so after a few hours, I took it back out and have left it out since. Woops? It says keep at room temperature so Idk.

 
Old 02-19-2010, 06:34 AM   #13
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Re: mystery (vaginal?) infection--help!

RepHresh Pro-B doesn't have to be refrigerated but Fem-Dophilus does since it's not a stabilized probiotic. Not all acidophilus products need to be refrigerated after their opened. My doctor actually told me to try purchasing the probiotics that come in a beadlet pearl form since they are vaccum sealed and the bacteria count won't decrease. The RepHresh Gel won't do anything for your infection since it's not strong enough to, there is something called Aci-Jel which you can find online and is sold over seas to specifically treat vaginal infections like bacterial vaginosis and yeast infections. However, what a lot of women do is fashion their own suppositories like boric acid suppositories or Yeast Arrest and they use the suppositories in conjunction with taking a probiotic like RepHresh Pro-B or Fem-Dophilus and it helps them a lot.

It's a good idea to double up on your probiotic intake while your on your period since this is the critical point for some women. The vaginal flora decreases during menstruation and afterward women may experience a mild vaginal infection as a result of this since the vaginal flora has shifted and hasn't normalized yet.

 
Old 02-22-2010, 07:38 AM   #14
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Unhappy Re: mystery (vaginal?) infection--help!

Well, I thought these probiotics might have been helping a little, but that's not the case. Sigh.

 
Old 02-23-2010, 10:07 PM   #15
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Re: mystery (vaginal?) infection--help!

To those that have had this same kind of infection or BV (if that is in fact what this is) in addition to the discharge, did you ever have like...pieces of tissue coming out when you urinate? Not blow your nose tissues, like skin/insides tissue. The last few days I've had bad pelvic pain and when I pee I see these pieces of something. It's weird.

Does it sound like an extra thing I need to worry about, or maybe could point me in the right direction of what this is?

 
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