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Old 06-01-2010, 05:08 AM   #1
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Angry Lichen Sclerosis

Hi, i am new to this board. I was just wondering if any women out there are suffering from Lichen Sclerosis, I was finally diagnosed with it on May 13-2010. I have been suffering for over a year now and was told i had yeast infections, atrophic vaginitis due to menopause.....Then i finally had a biopsy done and it came back with Ls. This has been the most horrible time of my life, i don't know what each day will bring, but most days just bring a lot of pain and suffering and crying. The Clobetasol just irritates the area more. If anyone else out there has this please write back to let me know how you deal with this most irritating skin condition.....Thanks

 
Old 06-01-2010, 11:55 AM   #2
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rosy9959 HB User
Re: Lichen Sclerosis

Well i guess no one has this bc i have got no replies...will have to try another place....thanks

 
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Old 06-01-2010, 03:14 PM   #3
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Re: Lichen Sclerosis

I have seen posts on here about this subject. Use the search and see what has been posted! But don't post in any threads older than 3 months because chances are the people who originally posted that stuff are not going to be reading it anymore by now so no one will see your post.

 
Old 07-01-2010, 12:04 PM   #4
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kellymac HB User
Re: Lichen Sclerosis

I have just been diagnosed with LS after a biopsy on June 1st.
I wasn't healing so my Gyno told me to see my Dermatologist.
He told me to STOP the steroid cream it thins the skin even more.
Go see your dermatologit ASAP. Mine put me on Vusion Cream.
My problem is it has been a month and one of the biopsy spots is still not healed.
Haven't had sex in over 2 months and my Husband and I are used to everyday twice on weekends. This IS a horrible thing to have, I become depressed.
Hang in there! But seriously make a Dermatologist appointment the steroid cream could be stting you back. I was on it for 3 weeks before I stopped.

 
Old 08-11-2010, 12:11 PM   #5
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sparkle magic HB User
Re: Lichen Sclerosis

Hi I myself have been just diagnosed with LS through a biopsy and started the cream 2 days ago.I am going to see a natural path sept.1st.and hopefully with have something.I'm 38yrs with 2 young girls and now worried that they may get LS.I feel sick to my stomach at the thought of sex now,not that it hurts when we do. Have you been told why this happens? I've requested blood work for hormones and thyroid.Thinking about ordering Perrin's Blend and giving it a try.If you have any good info please pass it on. Thanks

 
Old 12-02-2010, 08:01 PM   #6
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Singer01 HB User
Re: Lichen Sclerosis

I have had this condition for 30 years. On top of the LS I have had infection after infection. I have spent a lot of time going crazy, itchy and crying. I have scratched myself until I have bled. Especially in the night, I have woken up out of a dead sleep and clawed at myself. At first I had many infections in my 20's, bacteria, and yeasts of many sorts. The ph in my vagina was not right. I have seen specialists in Philadelphia and NYC. My vagina has split and has bled. I can not have sex. Could not wear pants or shorts and had difficulty wear a bathing suit this summer. I was diagnosted with vulvodynia-vulvarvestibulitis???? Have white areas and severe redness. Finally I went to a Women's Group in October and had a biopsy and found out after all these years of suffering I have LS. I am on the same cortisone you are on ( this is my second week). Of course, now I have my period. I am not able to wear a sanitary napkin without suffering. I am praying for some relief. I have been on several types of cortisone creams through out the years. Surgery is a last resort. You are not alone.

 
Old 12-05-2010, 07:42 PM   #7
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iona_23 HB User
Re: Lichen Sclerosis

A breath of fresh air to hear that I am not alone. At first I was thinking I had some kind of STD. But I've been with my husband for 13 years...unless there's something I don't know about. So...I am not diagnosed with LS just yet but with what I am now reading up on, this definitely sounds like something I might have. I thought it was because I started shaving and would make the hair grow out. But I started shaving years ago. This has just started like 3 years ago after the birth of my 2nd child....also the same time that I was diagnosed with an autoimmune disease-Hashimoto' Thyroiditis. They all come to play I think..so I am glad that I bumped into this page and I do have a scheduled appointment on Wednesday and hopefully will talk to my doctor about this. I hope we all start feeling better....and know that you aren't alone.

 
Old 03-14-2011, 11:46 PM   #8
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Re: Lichen Sclerosis

I am new to this. I am now 54. I was told back in 1981 that I had herpes. I was not sexually active so it bothered me to know that I had herpes. It wasn't till four years ago that I was told I have had Lichen Sclerosis nor herpes. I have lost most of my female structure. I am also easily irritated. Sex is rather uncomfortable. But I do have my good days. clobetasol ointment is what I have been using. Sometimes it does nothing for me. I have been using Pemarin vaginally to help make the tissue stronger and less irritated. Iwas told not to use fabric softeners. Wear cotton underwear. Do not use soaps in the female areas. It only dries out the skin. Avoid acidy foods and chocolate. With age I have acquired a bit of a week bladder so that tends to irritate the skin as well. So what I eat can affect how I fell.It can be miserable so I do feel for you. I have been told that they believe Lichen Sclerosis is caused from an overactive immune system. I have yet to find any information on an overactive one. It is all about an underactive immune system. I have been going through menapause and the hot flashes are horrible. I wish I had more good news for you but I am afraid that other than takingcare of yourself and trying not to stress over it is the best thing to do for yourself. God willing you have an understanding and supportive husband. Sorry I didn't have any better news. But there are alot of us out here that have the same problems. God Bless.

 
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