It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Women's Health Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-01-2010, 06:56 PM   #1
Newbie
(female)
 
Join Date: Jul 2010
Posts: 2
lovethelake49 HB User
Unhappy Newbie here and hurting! Is this vulvodynia?

In May I started itching. Thought that I had a yeast infection so I went to the GYN. Negative. He started me on Clobetasol for inflammation. It got worse. He tried a dose pack and it did not help. He basically said that he could not help me. I went to a dermatologist who suggested that I get a biopsy. Went back to the GYN and got two biopsies. These were sent to two different places and I am negative for LS. The burning continued day and night like a sunburn. The itching decreased. I had to cancel my vacation to the Lake and had to come back from Hilton Head early. I was in misery there calling my dermotologist at 8 PM crying and he would try different creams. Finally I went to a differnet dermatologist who suggested a lighter weight hydrocortisone. It burned. The burning continued. Ice packs at work. NO sex for over two months now, and no pants for over two months. It has been horrific! My kids suffer as I don't go anywhere and I am irritable. I lay around with ice packs. Sometimes, I have to leave work early and everyone asks why. I can't say to them my vulva burns! I went back to the dermotologist today and she said that since the hydrocortisone creams don't work I must have vulvodynia. She started me on Neurontin. I stoped all creams and now just wash with Dove for sesitive skin, wash off my urine and apply GoldBond Powder. It seems to help keeping it dry. I finally got my hormones drawn and my GYN said that they are "out of whack" and prescribed Premarin cream. I put that on and by the end of the day it burned so bad I just sat in my car and bawled. I finally just drove to the ER. My B/P was 158/98 and I was in serious pain. They gave me pain meds and monistat powder and got me in to see another Gynecologist for tomorrow. The dermatologist said "Thiss is not caused by hormones--you are too young" I am 46. I have been in constant pain (except for 2 days) for over two months. It doesn't hurt so much around the vagina just the labia. It burns like a sunburn that has been rubbed with hot water (when I walk). Around the vagina-it itches.
Questions:

1)has anyone found that Neurontin helps? He also started me on Elavil. The doctor told me that Neurontin takes 2-4 weeks to work.

2) Does this stuff come and go or will I have this every day at this level of pain for the rest of my life? I am 46. Does it go away completely at times? I would love to hear this!

3)What tests should I have done? I have Hashimotos. Has anyone had any help with Neurontin?

4) It seems the less I put on it, the better it is. Just Gold Bond powder and it got down to slight yeast infection level which is a little better than before.

5) Is Estrace better than Premarin cream. the Premarin burned!!

Anyway, I know that this is long but it is my first post and I am just getting really depressed. I feel horrible for cutting our vacation short etc. and that I have been short with my kids but I just hurt so so bad. Any thoughts?

 
Sponsors Lightbulb
   
Old 07-01-2010, 07:20 PM   #2
Senior Veteran
(female)
 
Join Date: Oct 2007
Location: NJ, USA
Posts: 9,381
Blog Entries: 32
janewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB User
Re: Newbie here and hurting! Is this vulvodynia?

Stop using cremes. No more cremes for you, ever, and do not even think about using that Monistat powder from the ER, that will absolutely make it worse. It really sounds like ultra-sensitive skin could be a key factor here.

It's probably time to look for a vulvar specialist.

Neurontin and Elavil are good for nerve-type pain. I found that Elavil helped me a lot with this problem, although I had constant pain only for a few days, and that faded years before I could find a doctor to take it seriously.

Treat your vulva with love. Nothing but cool water (and hopefully someday soon your husband!) should touch it, ever. No soap is necessary, just rinse. Sitting in a cool bath can ease the pain. And when you resume intercourse, no spermicidal lubes, condoms or jelly.

I wear only white cotton underwear, washed in hot water with no bleach and hypoallergenic detergent.

And yes, I have an almost normal sex life.

 
Old 07-06-2010, 04:13 PM   #3
Newbie
(female)
 
Join Date: Jul 2010
Posts: 2
lovethelake49 HB User
Re: Newbie here and hurting! Is this vulvodynia?

I will stay away from creams but I would like to use some type of powder as when I walk it gets chafed and the longer the day goes the more it hurts. When I wake up I am OK but by 5 PM I am close to crying.

My labs just came back also Estridol 69.5, FSH 40.9, LH 54.1

The dermatologist said I was too young for menopause. Does not look like it to me.

 
Old 07-06-2010, 04:28 PM   #4
Senior Veteran
(female)
 
Join Date: Oct 2007
Location: NJ, USA
Posts: 9,381
Blog Entries: 32
janewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB User
Re: Newbie here and hurting! Is this vulvodynia?

In that case, maybe you need something to protect against friction. I doubt a powder would help, maybe plain KY jelly?

 
Old 09-07-2011, 06:12 PM   #5
Newbie
(female)
 
Join Date: Sep 2011
Location: nevada
Posts: 1
delightfulone HB User
Re: Newbie here and hurting! Is this vulvodynia?

I sure have compassion for you, I am 62 yrs. old and married but no itamacy with my husband for almost 5 years,I had a heart transplant 10 years ago. I have tried to get help for hormones that I NEED BADLY now I HAVE DEVELOPED similar symptons as you it is very painful so I just went to urgent care and Dr. said I HAD ATROPIC VAGINITIS and I Needed hormones to cure me so he gave etrace, after almost 3 days I ALMOST HAD A STROKE MY BLOOD PRESSURE WAS 2OO/101 i STOPPED THE ETRACE AND I AM FINE NOW, however I AM BACK TO THE burning pain again. I HOPE WE GET AN ANSWER SOON.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
newbie here needing advice auntieL Knee & Hip Problems 3 05-01-2009 09:41 AM
Newbie Here... I have not been diagnosed yet but I have some concerns. Moonlady Fibromyalgia 35 07-07-2008 05:26 PM
Newbie-Advice needed-Having Thyroid surgery Aug. 9th mjb3367 Thyroid Disorders 46 08-28-2007 10:13 PM
Good News For Newbie!!!!!!!!! MOMOFBOYZ Fibromyalgia 2 05-12-2006 06:35 PM
Another Newbie Nan-NMW Osteoporosis 4 02-04-2005 01:10 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Alesse
Diflucan
Flagyl
Ibuprofen
Motrin
  Naproxen
Provera
Tylenol
Vicodin Yasmin




TOP THANKED CONTRIBUTORS



STLouisgal (54), Kszan (41), Titchou (39), twohands (23), Seraph (19), solofelix (16), janewhite1 (14), sjb (12), ladybud (12), Vanilla Kiss (10)

Site Wide Totals

teteri66 (1180), MSJayhawk (1011), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (761), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 12:15 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!