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Old 01-05-2011, 03:22 PM   #1
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Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

I am at my wits end, if anyone can help me or advise me I'll be so grateful...

Since the middle of last year I have what can only be described as a burning feeling in my vagina, mostly on the outer but on a bad day it can be inner too. When I urinate it burns. When I have sex it burns. My anus is also irriated at times.

Over this time I have had more and more mucus come down, it's just like cervical mucus and it is whiteish in colour. There is definitely too much of it! This stains my panties everyday and it dries like dried white paint. Sometimes this makes it feel itchy when I am out which is highly embarrassing.

Now I have had the same tests done over and over... everything is negative. Yeast, STDs, general infection. I have tried yeast infection medicine three times! I have even tried antibiotic cream, it didn't work. I was told I have a large cervical etroption (erosion) and although my doctor was a tad concerned about it my Gyno said it was nothing to worry about and that every young person has one! My doctor told me that artificial estrogen can cause it but my Gyno rubbished that completely and said it has nothing to do with hormones!

This brings me on to the pill. I was on the pill for a year or so, I had a lot of problems on it when I first went on it so I think I am quite sensitive to the hormones. I switched to Yasmin and was on that for almost year with no problems. When this problem started, it disappeared entirely during my period which made me think it was to do with hormones. However over time, and another pill switch later... it began to continue through my period and it has been non stop since. I am now two weeks completely off of the pill and I'm still getting the symptoms!!

I have considered the too much good bacteria thing as I do have actimel every day, and have done baking soda sitz baths. I think they made it worse.

I have considered all clothing allergies, soaps etc. I never used perfurmed things anyway.

I have been prescribed stereroid cream by both my gyno and my doctor... to me this seems like masking the symptoms. I do believe the discharge has something to do with it (the more my vagina burns the more the discharge). I am yet to start the cream because the stereiods worry me... should I use it?

And can anyone help me at all? Any similar experiences? I'm at such a low. I am 19 years old too!

Last edited by Grizabella; 01-05-2011 at 03:26 PM.

 
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Old 01-06-2011, 05:49 AM   #2
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

I would try to find a vulvar specialist. The vulva is basically the external part of the female genitals, the vagina is the part that's actually inside you. A lot of gynecologists know an awful lot about the internal organs, but less about the vulva than I do.

 
Old 01-09-2011, 01:38 PM   #3
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

Grizabella: So sorry to hear about your situation. I am experiencing something similar and feel your pain, literally! You are much younger than me, but I am 31 and have the same hopeless outlook on all of this as no one has been able to help me either.
My symptoms sound very similar to yours. Very "burny" outside the vagina in the vulva area, but also in the opening depending on the day. Discharge seems to vary from white to clear depending on the time during my cycle. I am also extremely red down there and is occasionally itchy all the way to the perineum and anus.
It is extremely irritating to say the least and it's very hard to go through daily life and concentrate on anything else besides this issue. I have been to the doctor several times as this has progressed from BV, to a yeast infection, to possible strep b, to maybe yeast again. Still, no conclusive tests or affirmative answers. Never in my life have I actually wanted a medical test to find something wrong with me!
Please keep us posted on your symptoms and any things you may find out. You have my complete sympathy and support. Feel free to write me and best of luck beating this!

 
Old 01-09-2011, 02:55 PM   #4
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

Hello! Thank you for your message! I hope we can beat this! I totally know what you mean about wanting to have a test come back positive for something in order to treat it and make it go away! I have been told "maybe yeast" a couple of times even though my tests come back neg for yeast and treatment does not work!

Since my last post I have been prescribed anti-depressants to supress the nerve endings and I really don't want to take them because I think it is just masking it! The side effects are nasty too! I just want to know the CAUSE of it!

I was totally depressed and at a wits end last week because I felt I had run out of options but I'm now starting to consider a new theory... that perhaps it is something to do with my urine. The urine hits the vulva and also can trickle down to the back passage and it is in these areas that the irritation occurs. I have been doing some research and I have found some websites saying that a person could have too many oxalates in the body and that it can form crystals in the urine, which could irritate the vulva. My dad has gout which is caused by too many oxalates. I've even read a theory by a doctor who says that oxalate crystals can get under the vulva skin and and irritate it. This doesn't explain the discharge from vagina though. :/ My urine is very dark yellow in colour. I may request a proper lab urine test next time I go to the doctor and see what comes up, at the moment this is my only avenue to explore and if it fails then I am back to rock bottom again.

Answersplz, have you considered urine yet? It might be worth a go. And does yours subside a little during your period? When I first had this problem my symptoms disappeared completely during my period and came back instantly the day I stopped bleeding but nowadays it just subsides a little bit but is still very much there. I will post back here with an update at some stage.All the best.

Last edited by Grizabella; 01-09-2011 at 03:04 PM.

 
Old 01-09-2011, 03:50 PM   #5
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

If your urine is very dark yellow, you probably aren't drinking enough water. Drinking more water will thin out your urine and possibly reduce your pain.

Also, when you go to the bathroom, try blotting with damp paper instead of wiping.

 
Old 01-09-2011, 03:52 PM   #6
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

Thank you Jane for your advice, I will try those two things!

 
Old 01-09-2011, 04:02 PM   #7
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

Glad to hear back from you, too. This whole experience has been so depressing and scary due to the symptoms AND the fact it's not something you can really share with a lot of people. I've been suffering pretty much in silence, so it's nice to be able to communicate with someone else who understands.
From your first post, I saw that you were given a steroid cream. I was also given a cream to use externally, clotrimazole 1.0% betamethasone .5% which is an antifungal and steroid. Been applying 2x a day for almost a week with little relief. I would have settled for even a brief subsiding of the burning, but no such luck.
As for the urine, that could be something to consider. Interestingly, my dad also has gout. I could see how something in the urine may be irritating everything else down there. The discharge thing would still be a mystery though. I know I typically had a loy of discharge prior to these other problems, but somehow it seems different now. However, the last 2 doctors said that everything looked ok under the microscope and my last cultures came back negative, including for strep B which the doctor was convinced it was. She did also say she saw a large amount of white blood cells, but since the cultures were negative, she had no explanation for them. Did any of your doctors ever find the white blood cells to be an issue with you?
I am thinking I need to have the next doctor look again for that and possibly test again for strep B. The last doctor said that slides and cultures could sometimes be damaged in transport to the lab and therefore come back negative. Very reassuring! :/ I will also ask about the urine possibility and also about cervicitis. I am not convinced that is what it is, but my sister has been researching for me as well and thinks that is also a possibility worth exploring. At this point, I'm willing to try anything!
Sorry for rambling, but again, it's so nice to be able to exchange ideas with someone who is going through the same thing. I have not been myself in months and just want some answers so I can feel "normal" again. We WILL beat this!

 
Old 01-09-2011, 04:09 PM   #8
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

Oh, and I forgot to mention the period correlation. Everything did seem to subside during my last period as well. I was feeling ok until the last day and then it came back full force. I have been dealing with varying degrees of irritation since that point about 3 weeks ago. I am due in another week or so (if I'm on schedule which I have never really been) and I am curious to see what will happen. I am not sure what to do about tampons either. It may be painful to use them or it may be worse to wear pads and have them continuously rubbing the already irritated areas down there. I guess we'll see!!

 
Old 01-09-2011, 04:32 PM   #9
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

I didn't seem to have any problems with my white blood cells, I got no feedback other than everything comes back negative.

The way that our problems subside during the period is interesting - I always thought that was a clue to something but from all my research the only causes that would subside during the period would either be yeast or hormonal factors. Your period can actually beat yeast sometimes (so my research says). I did have a bad yeast infection in 2009. However my tests are constantly negative so I'm sort of ruling that out for now, and I've had a high vaginal swab AND a vulva skin swab to check for it.

It really does take it's toll psychologically, it is on my mind all the time and I feel uncomfortable on a daily basis. I am glad you understand (but sad that someone else is suffering). It's just so frustrating not knowing what's wrong and wondering if it's going to go on forever. I am glad my boyfriend is understanding but it's not good for us at all - the fact that it hurts too much to be intimate! It also frustrates me that doctors give different information and just prescribe things to try and mask it, and as you say the steroid cream didn't even work for you! It seems they don't really understand this sort of thing.

We gotta keep trying though!! I hope we find the answer!

Last edited by Grizabella; 01-09-2011 at 04:35 PM.

 
Old 01-09-2011, 05:44 PM   #10
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

Just another idea/question. When you had your swabs done for yeast, did they test for different types? I guess generally doctors look for the obvious kind that can be treated with the OTC meds or diflucan. However, from researching I have seen that all yeast may not be easily detected or respond to these treatments. If you have a history of yeast problems, perhaps there is a different strain that is affecting you. I read that there is a test you can request, a Culture for yeast in a broth called
Sabaroud's medium that can test over a 100 different types.
It's good that you have an understanding bf that knows your situation. I have not even talked about this with partner yet as I don't even know where to begin. I don't want to hide anything, but we have a complicated relationship as it is and it's not something that's easily discussed. I have just been avoiding the conversation and any chance for intimacy. I'm sure the distance is felt and it's taking a toll on both of us. I would just rather be able to say what my problem actually is rather than have to explain the whole horrible mystery to someone else.

 
Old 01-10-2011, 03:11 AM   #11
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

I believe they just tested for the normal kind, as it wasn't a yeast test only it was a test for all infection so I guess they didn't focus in on the yeast thing. I tried a no yeast/no refined sugar diet for a week but I had a nasty flare up that week (however I was also using antibiotic cream so it could have been that). Also, when my problems first started it was VERY sudden and the worse flare up I've had during the whole 7 months, it was just like how my only other yeast infection started but without the discharge. Did yours start suddenly too or was it gradual? My mum was wondering about a different strain of yeast too... I will bring this up at my appointment which is in a couple of hours! I'm going to say to the doctor (the third doctor I am trying!) that I just want all the possible tests done before I start trying to lessen the pain with nasty drugs! I'm not sure how far I will get though. I will post here after my appointment.

It's a very difficult thing to talk about with a partner, I always joke when I talk about it that "this is so romantic isn't it!" but it does help to have his support. It is embarrassing but after a while it lessens, I hope your partner will understand if you do decide to share it at some point! They may be a source of support for you.

Last edited by Grizabella; 01-10-2011 at 03:43 AM.

 
Old 01-10-2011, 03:32 AM   #12
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

Try douching with diluted betadine (or the generic povidone iodine solution usp - its exactly the same, but much cheaper)

Mix 20ml of betadine in a cup of warm water, and douch twice a day until the symptoms are relieved, then once a day for another week or so
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Old 01-10-2011, 06:05 AM   #13
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

Sorry, Jonnstar, going to have to contradict you again.

Don't put anything on it except water unless ordered to do so by a doctor who seems to know what's going on, and even then, ask 3 times if it's really necessary. Even cortizones can make it worse. Antibiotics or anti-yeast treatments should be taken orally, because clearly skin irritation is part of what's going on here.

Oh! one more thing. Never, never use a condom with spermicide, or any birth control with spermicide. Nonoxynol-9 is terrible on the woman's body, actually INCREASES the risk of STD's by destroying her natural defenses, and is terrible for ongoing vulvovaginal problems such as you ladies have. The last flare-up I had, and the only one I had since seeing my vulvar specialist, was caused by me failing to read a condom label.

 
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Old 01-10-2011, 06:15 AM   #14
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

Just got back from the doctors, she said as all my swabs are clear then there is nothing to explore. GREAT! Anyway I suggested the urine theory and so she had a look, put the dipstick in and said everything looked fine (not what I wanted to hear!!) but thankfully she said she would send it off anyway to the labs. She said I could do a stool sample if that fails just incase I have some weird bug. I'm just going to stay positive until I hear the results, though I am losing hope.

Oh and I mentioned the different strains of yeast thing and she said that would have been picked up in my swab. Hope she's right about that.

Anyway grr still frustrated.

 
Old 01-10-2011, 07:24 AM   #15
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Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

OK I've been doing some research and I'm leaning again towards cytolytic vaginosis, the overgrowth of good bacteria thing. I did consider this before but I tried the baking soda baths and I did not have any difference (I did it twice a day for three days before giving up). This would make sense as I do overload on good bacteria simply because I never wanted thrush again.

Would this have been picked up in my high vaginal swab though? Does anyone know?

 
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