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Message
Posted by Debbie on April 11, 2000 at 23:00:01:

In Reply to: Re: Brain lesions posted by Chery on April 11, 2000 at 22:26:16:

: : : : I've Had 2 Injuries, One In 1992 and 1997! Both Were A Flexion Injurie's I Have A Herniated Disc In My Neck And Moderate Cervical Disc disease. I Also Have A Bulging Disc In My Lumbar And Another Disc In My Lumbar Is dessicated, I Have mild lumbar Disc disease!
: : : : I Have Been Diagnosed With Reflex sympathetic Dystrophy. My Question Is Relating To The Brain. I Have 5 Spots On My Brain, M.S. Has Been Ruled Out, I Have Severe Headaches And Stabbing In My Eyes And Temples My Vision Gets Goofy Also! I Have Been Fighting For W.C. Because Of My Injuries, But The Company Is Saying That I Have Healed From My Previous Injuries And That what I Have Now Is Not Related To My Injuries! I Have Full Body R.S.D. Why Do I Have These Spots On My Brain And How Could I Have Gotten Them With out Being Injured? This Has Been Very Confusing To Me!! I Would Appreciate Anyone Who Could Shed Some Information On This Brain Disorder! The Biggest Lesions Are In My Temporal Lobes Thank You

: : : Dear Greg:
: : : I have a lot of the same symptoms as you do but have no diagnosis. I have had a constant headache for 2 1/2 years, blurry vision, spots on my brain, tingling, numbness, weakness, & tremmors. I have also had M.S. ruled out. Have you been checked for Lymes? As we get older we do tend to have some white matter changes on our brain. I used to work for a neurologist before I became ill so I did learn that is common. I am not sure how old you are, or if that applies to you. I am on disability now and have been for about two years. I live in NJ and have seen many doctors. If you need someone to talk to who understands how you feel please e-mail me. My address is listed above. Try to stay positive. Do not let doctors tell you that it is all in your head and that there is no reason for your problems. I have finally found a doctor that I am confidant will help me. I wish you the best of luck for your future. If I can be of any help feel free to contact me.
: : : Debbie

: : Hi Debbie. I would like to chat with you about your headache's. I can't find your eamil address any where in the post. Thank K

: Debbie and/or Greg-

: I've had a diagnosis of "possible MS" or transient ischemia or head trauma some five years ago. An MRI showed 10 lesions on my brain. At that time I had an HMO which didn't much want to go the distance with me. I did ask (and was sent) to a neurologist, but he didn't do much and likewise didn't speak very understandable English, so my list of questions went pretty well unanswered. Since then, I've lost my insurance and have not been able to get more, ergo no more doctors info about MS or anything else. Symptoms seem to be relapsing/remitting (mostly remitting). Right now I'm having a double vision/dizziness/fatique attack of some sort. Very disconcerting. Just curious--how did they "rule out" MS?
: Chery

Dear Chery, The only way to truly rule out MS is through a spinal tap. They test for the Igg bands. There are blood tests but the spinal tap is the test that is the most highly regarded. I do know this because I worked as a medical assistant for a neurologist and because I have gone through so many medical tests in the past 2 1/2 years. Have you called your local hospital? In NJ the hospitals have what is called charity care for people who do not have insurance. You do get to see the doctors you need but through a clinic rather than their offices. It is not the best situation because you sometimes wind up waiting for a long time in the clinic and sometimes have to wait a long time for an appointment but at least there would be medical care and it would not be such a financial burden to you and your family. I wish you the best of luck.
Debbie

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