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Posted by nicole on May 20, 2000 at 00:56:03:

In Reply to: Re: small cell lung cancer posted by diana on May 04, 2000 at 10:57:24:

: : : : : Are there any other small cell lung cancer survivors reading this board? If so, I'd like to hear from you.not a survivor, but I believe angio/endostatin should be used.
: : : Vigilante, I was given paraplatin, etoposide, and decadron for six months in l994. I have checkups every four months--but I'm still well!I'm not familiar with the substances you are recommending.
: : : Sari
: : Sari-
: : I have a type of cancer that is similar to small cell lung cancer. I currently have tumors in my right lung. I have undergone numerous treatments of chemo and radiation. I have also had a lobectomy and wedge resection of both lungs. I am currently on topotecan chemo and taking thalidomide daily. The trial drugs that vigilante talked about are hard to get into and have a long waiting list. I am currently on a waiting list for the endostatin trial in Boston. Also it is a phase I trail so there is no data to prove that it works on humans. I believe he is jumpiing the gun to suggest that everyone take these drugs. They are phase I trial drugs. No one knows what they could do to you. First, anyone diagnoised should try the treatment that has has some success rate before trrying something experimental. I wish you luck.

: do you hve small cell? i am curious my mom has limited small cell and we are thinking about topotecan. is the thamaldomide for non small cell or small cell. if it is helping you, i sure would like to know, and how your doctors made that treatment decesions. endostatin is also in wisconsin and texas. would love to know more , thanks


I think the thalidomide has been working. I was weezing and coughing before I started it and now it has gone away. I started taxol last week due to the topotecan not working. My cancer has not spread but it had grown some so we decided to switch drugs. The only side effect I had with the topotecan was low blood and platlet counts. I have neuroendercrine cervical cancer that has spread to my lungs. It is a very aggressive type that has no know cure. I wish you and your family the best.

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