Posted by JLM on May 31, 2000 at 22:11:44:

Hi, I am losing my mother to this awful disease. We have been very lucky up to this point. She was one of very few that had the surgery. She was doing fine for a while, but her health is starting to fail now. I know the outlook is not good, but can anyone please help me gain some knowledge about what is to come and what I can do to make her more comfortable. Is there anyone out there that is willing to talk to me about this. I know if you have been through this it has been terribly hard for you, but if you could just share your experience with me, maybe I can survive this too! Thanks and God Bless. JLM