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Posted by artemis on June 25, 2000 at 07:13:12:

In Reply to: Just a little update and a lot of venting. posted by Maggie C. on June 25, 2000 at 02:52:58:

Maggie,
I am so sorry that you and your mother are having to go through this. My husband has SCLC, diagnosed 4/99; he is 55. I honestly don't know if he was older, whether he would have taken the same stance as your mother. He has fought tooth and nail, and so far, he's winning. I won't say there weren't times that he wanted to give up, but for the most part he has had a good quality of life. He had two brain tumors and two lung tumors at time of diagnosis, so he's been through a lot. As far as your Mom's pain, she shouldn't be having to deal with this. Why isn't she on Morphine? As far as vomiting, since she is not receiving treatments, you may want to get her a brain MRI. SCLC is prone to metastasize to the brain, and one of the symptoms of brain mets is vomiting. You also want to watch for personality changes, slurred speech, trouble walking. What many people who opt for no treatment don't realize is that the disease will progress, and instead of having to deal with side effects from treatment, they have to deal with side effects of the disease itself. Sometimes you just have to be pushy and let people know what you want. Maybe you could call Hospice and tell them you are not happy with the current nurses and would like to try someone else. Don't forget-even though they are paying for those expensive drugs - your Mom is paying for the service, and like anything else, she is entitled to get what she pays for. Best wishes for you and your Mom. She's very lucky to have a daughter like you.


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