Posted by Rhonda
on June 25, 2000 at 14:21:15:
In Reply to: Just a little update and a lot of venting. posted by Maggie C. on June 25, 2000 at 02:52:58:
: I have posted to this board before about my mother who was dx with SCLC on April 5, 2000 and opted for no treatment. Mom has been having to take more and more pain meds in the last couple of weeks. She sleeps most of the time and gets sick and vomits every day. I just wish she didn't have to go through this. One of the reasons she opted not to take treatments was because she didn't want to spend her remaining days being sick. Mom is 74 years old and said she has lived a full life and is not afraid to die. But why, if she chose not to have the chemo because she didn't want to have the sickness, is she so sick anyway? It is so hard to watch her dying this way. Her quaility of life is non exsistant. She is on pain patches, taking Oxycontin every twelve hours, and has to take the breakthrough pain meds several times a day. The Hospice nurse says she will talk to the doctor and he will probalby up her patch to two at a time and still have her on the Oxycontin every tweleve hours. Isn't this a lot of pain meds? It took us nearly 3 weeks of practically begging the Hospice to get her something for the vomitting. Oh they had gotten her some pills for it, but they didn't work, so they told me to give them to her rectally. Well that didn't work either. Finally I told her nurse something had to be done before she dehydrates. So finally they got her something else. Some times I get real discouraged with the way Hospice is handling mom's case. They claim to have full family support, but where is it? Just call they say, but when do I have time for that? I guess I am just worn out and needing to gripe. I get little or no help from my sisters either. They just don't seem to have any more time to help than Hospice does. The only good thing about Hospice that I can see is they pay for all this high priced medicine that doesn't work. Forgive my venting, I just needed to let off a little steam. Maggie
My Motherwas given morphine for pain. She had a PICC line put in her arm so she would have a constant drip of morphine and could push a button to get more if she needed it. She wore the small pump in a fanny pack around her waist. Home health care took care of the pump and changing the medication bags in the pump. My mother asked me not to let her suffer, I did the best I could, but there were times I had to fight doctors and nurses and change nurses to get more help for her. Don't be afraid to fight for what you think is right.