Posted by Natalie
on August 03, 2000 at 10:05:46:
In Reply to: Re: ovarian cancer posted by Donjoe on August 02, 2000 at 21:38:23:
: : : Natalie and DonJoe,
: : : My mom was diagnosed Aug. 98 with stage 3C ovarian cancer she was on Topotecan for only about 3 treatments and it quick working. There are alot of different drugs out there so drill your doctor and find the best one if they take her off of the Topotecan. My mom was on a clinical trial that nearly wiped out the cancer all together but then developed neuropathy so she was taken off of it. She currently isn't on anything until they figure out what caused the neuropathy. Before the clinical trial she was on Taxol, Cisplatin and the Topotecan at different times but all quite working after a few treatments. Ask your doctors about the clinical trials I know there are alot out there. The one my Mom was on was made by Eli Lily I believe,it didn't have a name only a number. I'm not sure if your aware but there are 2 great web sites for ovarian cancer patients as well as there caregivers they are the National Ovarian Cancer Coalition NOCC and the National Ovarian Cancer Association. The NOCC has a message board much like this one. Best of luck to you both and your loved ones. GOD BLESS.
: : : Lori
: Hi Lori,
: Thanks for the two web sites you gave us, they are great sites.
: How did your mother know after only 2 or 3 treatments of topotecan that it was not working ?
: Also another problem were having is the ca125 marker as never been a good one for us it has been low for the last 3 yrs.
: Thanks donjoe
Lori and donjoe,
Are your doctor' doing CAT scans? My mom's doctor runs them periodically to make sure the cancer has not spread.
I think they are mostly concerned with it spreading to the lungs. I am glad to finally find someone to talk to about this.
It is a horrible experience and I cannot wait until Mom gets better so we can all get back to our normal lives. Unfortunately,
I think things will never be the same again.