Posted by Danni R.
on August 10, 2000 at 01:11:58:
In Reply to: Re: age 16 w/ hodgkin's disease posted by Ruth P. on August 06, 2000 at 09:21:15:
: : Hi,
: : I am a sixteen year old with stage IVb hodgkins. I am reciving COPP-ABV six cycles. Tomorrow I will go for my 5th cycle. I would like to hear from anyone who has or had Hodgkins. I will be able to answer any questions you might have. I also would like to hear your story and would like to share mine. e-mail me at firstname.lastname@example.org I will be waiting to hear from any of you. Best wishes to all.
: : Vanessa Rey
: : 16
: : Fresno California
: Hi Vanessa,
: Thought you might be interested in this web site. It is a Hodgkins Lymphoma message board. Go to www.lymphoma.org scroll down and to your left click on message board, when that comes up, scroll all the way down and click on Hodgkins Lymphoma. Hope this helps
Hello Vanessa, I am sorry to hear, that you have been stricken with this sort of cancer. Good news is, it is very treatable. My 11 1/2 year old son was diagnosed with hodgkin's stage 4a. He has undergone special treatment, a trial study developed in Germany and also used here in the USA. His treatment is done on an outpatient basis with BEACOPP, then ABVD. He responded very quickly to the treatment. The only dilemma is, that we have to decide, wether to allow radiation treatment at the end. That is difficult!
You can read his story at http://www.fortunecity.com/meltingpot/cavendish/1196/index.htm
Don't worry, you will get better, too.