Posted by Patty
on November 22, 2000 at 19:49:33:
In Reply to: Re: Taking or not taking tamoxifin posted by rosilita on August 26, 2000 at 20:12:54:
: : I am wondering if there are others out there who have had to face the decision of taking tamoxifin or not. I would like to hear from you. I took it for a couple of months and I stopped because I didn't want to be one of it's victims. The information on it said that at least one person out of so many had died and it could cause uteran cancer. I am now in my fifth year and doing great. I'm told tamoxifin works for only 5 years anyway so what do you do after that? Please write and let me know your stories. Thank you Kathy.
: i had a couple of breast readings that weren't cancer, but put me at a higher risk of eventually developing cancer, and was thus offered tamoxifen. i too turned it down, not only does it increase the risk of endemetiral cancer, it can cause spontanious bleeding which causes difficulty even determining why someone is bleeding from their utterus.(although an oncologist assured me, that endemerial cancer is not one of those silent ones, and i would have symptons if i developed it) i am waiting out the results of the star trial and see how effective raloxifine is, so far they don't think it has the side effect of endemetrial cancer. yes, it is only effective 5 years.i picked a top notch breast surgeon who does close exam and mamograms every 6 months. i know that is not full proof also, but i felt it was the best think going unless i truly wanted to modify my diet to mostly vegetarian. its a personal decesion, some people sear by their tamoxifen. they know it cuts their risk by 50% I still wasn't comfortable with that side effect.
Is there anyone out there who is on Tamoxifin and have anything positive to say. I am on Tamoxifin and was not sure I wanted to take it. I went with the advice of all my doctors who encouraged me to to take it. I know the risks but I also do not want breast cancer again. It seems to me its a no win situation.