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Re: non-spousal caregivers
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Posted by Tina Ellenburg LVN
on December 05, 1999 at 13:10:13:
In Reply to: non-spousal caregivers posted by judy on April 17, 1999 at 01:30:02:
I am so sorry about your daughter and you should be commended for the care you give her. This is a difficult thing to live with. I am a nurse in a nursing home and have been for 5 1/2 years. I graduated nursing school in Amarillo Texas in 1994, before that I cared for my terminally ill grandparents for 5 years while raising my son, so I understand what you are going thru completely.
I agree with you 100% about social security. My mom didn't marry my stepfather until right before he died because he wanted her to have his retirement money and social security. They lived together on and off for 40 years. It took my mom about 5 years but she finally got his social security. Where they lived there is no common law marriage but he died here in Amarillo and so she had to prove that she had gone by his name all those years and lived with him as man and wife. He died of Hodgkins disease and she was his caregiver along with hospice, he wouldn't allow anyone else to care for him right up to the end.
You should be eligible for medicaid and food stamps if you aren't already receiving them and there should be some resources in your town to help you. Check with the department of human resources. They should be able to help you with respite care also. What is your daughters problem? The reason I ask is that if it is like cerebral palsy or something well known like that then there usually are foundations where you can go for financial and medical help. Also you might try vocational rehabilitation---they may be able to help you with education to help you work at home---like secretarial, medical transcription, etc... and they may know of some resources that can help you with bills and food, etc...
I wish you the best of luck and if you need someone to talk to or just to gripe at send me an email. Due to a back injury I can't work right now and so am always here to listen and offer support and friendship. My heart and good wishes go out to you.
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