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Re: non-spousal caregivers

Re: non-spousal caregivers

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Posted by jhon on May 30, 1999 at 15:09:44:

In Reply to: non-spousal caregivers posted by judy on April 17, 1999 at 01:30:02:

: Hopefully, we will recognize on this forum that there are many parent/caregivers out here that also have support needs. I have cared for my 40 year old daughter with severe developmental disabilities for most of her life. That involves tube feeding, replacing the tube when it comes out, diapering, tranferring, positioning, medications, seizure care & faces, not the least of which is financial hardship due to ones continual need to be in the home. I joke that I am going to be my towns first bag-lady with no home, no social security, etc. I have been trying to get legislators to recognize the caregiver as a "job" that qualifies one for quarters in regards to Social Security. The other alternative is to recognize the family caregiver in a case like mine as the beneficiary of her husbands Social Security benefits regardless of a divorce or not. This should especially be done since families with the need to care for a disabled member end in divorce 80some% of the time. Social Security rules disallow a spouse who is married for less than 10 years to collect from a spouses benefits, regardless if that spouse could remarry or work outside the home. My daughter ensured that I would not have the opportunity to do either.

I'm so sorry to hear about your daughter & hope you will find a solution. but tell me please - have you ever tried to hire someone to be her caregiver ? I did it and it DID change my life...



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