Posted by Carolyn
on November 09, 1999 at 16:12:42:
In Reply to: Life Expectancy with CP posted by Laurie on October 05, 1999 at 14:39:50:
: What are the general guidelines of life expectancy with very severe CP?
My child also had very severe CP. Her CP affected all of her muscles including her breathing. She was non-verbal and totally dependent. She was the love of my life. The local United CP Association and the research I did said that CP cannot cause death. However, we did lose our lovely Audra when she aspirated in her sleep at the age of 12. I encouraage you to pursue all services and medical support you can.
Including if necessary suctioning of the lungs and tube feeding to increase your child's weight.
Most persons with very severe CP end up dying from
pnemonia or related lung disorders. Treasure everyday and God Bless.