Posted by Tom.B
on November 16, 1999 at 19:20:19:
In Reply to: Re: 9 month old diagnosed with CP today posted by Lilah on November 11, 1999 at 19:14:37:
We have a daughter with CP 26 years old. I cried bitter tears of despair when she was first diagnosed - so I know and understand the hurt you are feeling and I will pray for you - I know you will be ok no matter how bad it looks now.
It took years for me and my wife to accept that our daughter was not going to be normal - I really believed it was a curse from heaven I cursed God for the cross I believed he gave us - I was even ashamed of my own child.
26 years and many buckets of tears and I know now we were blessed. She has shown unending love for me and her mum and never fails to amaze us by the way she copes with her difficulties. Although she does not speak and appears to have a short concentration span, she learns what she needs to know or do, in spite of her limitations and is a mindreader as regards anything that is going on in the house. She is a contented and well adjusted young person and has a quality of life that she really enjoys we enjoy her and thank god for her each day.
It sounds as though your baby is only slightly affected and I'm sure you will find a way of improving the situation - they said my daughter would never walk and although she could not move around until she was 3 she walked when she was four because she needed to get around with the other kids - stimulation is great for CP's.
There are specialist clinics that can help a lot and there is a great deal of new advances in computer aided learning that will probably bring your child forward faster than a normal child - so don't worry - you will be fine - and remember you will have someonbe to love all the days of your life.
: : My baby was diagnosed wiyh CP today. He is 9 months old. He moves around on the floor, and can get from room to room. He doesn't sit but he is starting to get up on all four's. They said he will probably never walk, this after a 15 minute assesment. Can they be wrong?
: : I don't know what to do but cry!!!
: : Kim
: Kim, You don't have to take the first diagnosis as the diagnosis. Try getting a second opinion, it doesn't hurt as long as you keep an open mind. If the second opinion is the same then learn as much as you can about your sons type of C.P. I know I cried when my daughter was
: diagnosed and still do every once in a while. God doesn't give his special children to just anyone, he must think an awful lot of you to trust you with one of his special angels. Learn as much as you can, remember that noone knows your son better than you do. They may have the
: medical degree but you know your child. Good Luck