Posted by TheGolem
on December 21, 1999 at 11:11:07:
In Reply to: Re: Life Expectancy with CP posted by Carolyn on November 09, 1999 at 16:12:42:
: : What are the general guidelines of life expectancy with very severe CP?
: My child also had very severe CP. Her CP affected all of her muscles including her breathing. She was non-verbal and totally dependent. She was the love of my life. The local United CP Association and the research I did said that CP cannot cause death. However, we did lose our lovely Audra when she aspirated in her sleep at the age of 12. I encouraage you to pursue all services and medical support you can.
: Including if necessary suctioning of the lungs and tube feeding to increase your child's weight.
: Most persons with very severe CP end up dying from
: pnemonia or related lung disorders. Treasure everyday and God Bless.
My son who is 36 is beginning to have difficulty breathing and swallowing. What do I do?
We have scheduled an appointment with a doctor, but most can't tell us much.