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Posted by pat on January 10, 2000 at 08:07:30:

In Reply to: Re: very mild CP in 2 year old posted by Karen on January 05, 2000 at 21:03:20:

: Katie: I have a 2 1/2 year old daughter who was diagnosed before her second birthday with mild CP. She started receiving therapy around 12 months for significant motor delays, At 19 months she started with speech therapy for speech delays. At this point, my daughter is able to walk, although unsteady at times and she is unable to go down stairs. Her speech has improved, but it is difficult to understand her. Sign language has help with her communication and has helped to decrease her frustration. As far as her drooling there has not been any improvement as of yet, but hopefully with the oral motor stimulation that to will improve over time.

: : Katie, I have a 2 1/2 year old (3 in Feb) with CP and Scoliosis. He was diagnosed with CP at birth and had some feeding "issues". He is saying 1-2 word sentences and is also starting to mimic. We are in speech therapy which helps a bunch. If not him...me because it gives us ideas on how to help him speak more clearly. There are also oral stimulation exercizes you can do with your daughter to encourage her to swallow and decrease the drool. It helped with our son...very rarely does he drool now. :) Progress is slow but steady. I would get an appointment with an occupational therapist and speech therapist as soon as you can. It definately helps. Good luck! :
: : My 2 year old daughter was just diagnosed with very mild CP. She can walk but her right foot turns out slightly. She is very left handed and has been from the moment she could pick up an object. Although she uses her right hand to help pick up things and catch a ball, she has much less use of that hand. She does speak but it is sporadic and varies from a single word to a 3-4 word sentence to babbling. She drools whenever she is concentrating on something. She understands almost anything you say to her but has only just begun to mimic words.

: : : Has anyone else gotten a similar diagnosis?

Katie - I have a 4 1/2 year old son diagnosed with mild CP at age 1 (spastic diplagia in legs, weak cranio-facial muscles, severe tactile defense, ataxia, feeding "issues", spasticity associated with the sphincter muscles). At present, he is doing fantastically well although we still have some feeding issues. I firmly believe that early, intense intervention is critical to these kids becoming "age appropriate". My advice to you is to deal with the clinicans available to you. I found that the medical community is unable to accurately diagnos/treat kids with mild CP (although I would listen to your pediatric neurologist - they seem to be the only ones in medicine who understand). My son couln't move his bowels on his own nor could he eat solid foods and I actually had a pediatric gastroenterologist tell me "well, if the kid doesn't eat, do you expect him to shit" and he knew he had mild CP!!! My son had an OT who specialized in sensory integration, a PT and a feeding therapist working on him. They were fantastic not only to him, but to me. I find the clinicians have far more information and are much more practical than any of the other medical professionals -- simple things like buying a tricycle with a high seat back so that my son could support his back while pushing with his legs. Well anyway, good luck and e-mail me if you have any questions.

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