Posted by Barrie
on February 04, 2000 at 23:58:50:
In Reply to: Re: oral baclofen posted by melissa on January 30, 2000 at 16:18:38:
: : Hi, I am the mom to 4 /12 year old Erin. Erin has moderate spastic diplegia. She walks with a walker, talks, (lots of articulation therapy!) and does well. She has not made much prgress in PT lately due to VERY tight hamstrings and adductors. We want to move her to crutches but she is too tight in her legs and doesn't yet have the balance. Her tightness is really slowing her down. Her Drs. have given us a RX for oral baclofen. I dropped it at the store about four months ago but I am afraid to give it to her. Her trunk is a little mushy and I am afraid the med will make it worse. Also, she is so bright and spunky, I want to keep her that way! The idea of such a heavy duty med scares me. I'm afraid she will get groggy. Any experienced parents out there? Would love to hear from you! Please feel free to email me directly.
: : Thanks,
: : Chris email@example.com
: my son has been taking orl baclofen for about 4 monthes. At first i made him a little sleepy. But once his body got use to it he it fine. And we do see a difference in his legs. Have you thought about botox shots? James has had them twice and there worked great. They do hurt when they get the shot. His doc. put him under to do it. BUt so far they have worked the best. good luck
My daughter is 3 and we tried it for about 6 months but it made her more floppy thru the trunk and also made her foggy. It was worth a shot, but it didn't work for us. We've had two botox shots as well and are still trying to determine if they are worth the pain. It seems to loosen her up a little, but not dramatically. Good luck!