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Posted by Gary on February 19, 2000 at 19:09:22:

In Reply to: hip subluxation posted by marc on February 07, 2000 at 10:26:15:

: My 3 1/2 year old son with CP is scheduled to have bilateral hip surgery in March. He will be in the hospital for 5 days, then in a cast from his hips to ankles for 6 weeks. After this, the doctors want to admit him for at least 2 weeks of physical therapy to help regain the skills he will have lost during his time in the cast. My son can not walk or stand on his own. We don't know if he ever will. Has anyone had experience with this surgery? How difficult is the recovery for a child? I am absolutely sick over this but want to help my son as much as possible.

:
: Marc

Dear Marc,
Would you like to hear some good news?????....My daughter had the surgery that your son is scheduled for, and yes it is painful and anguishing for both the child and the parents. But DON'T GIVE UP!!! My daughter has also had a bi-lateral de-rotational osteotomy. That means they cut through the bones in the legs, turned them and reset them straight again. THat was also a very bad experience for all of us. BUT!!!!!!-------and now here's the good news. My daughter, who was diagnosed at the age of 9 mths with severe CP, was told by EXPERTS (at Children's hospital in StLouis) that she would NEVER be able to sit by herself let alone stand or walk, is now 21 years old and races around (and I do mean RUN) with the help of a walker. I can never thank enough the Army surgeon who made all of this possible for us, because he was the one man who never gave up on her. It will be hard for you and it does have risks and chances like anything else, but keep your faith and love for your child and do whatever you think is best for them. Many times I thought that we should just stop, but the surgeon (Dr. Reinker - Col, US Army - Tripler Army Medical Center) explained to us that we had to understand who was the one with the handicap...is it our child or is it us?

I now do volunter work with handicapped chidren, knowing that I can NEVER repay Dr Reinker for what he did for our daughter and our family. Good Luck to you and your son.

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