Posted by Debbie
on February 24, 2000 at 19:54:23:
In Reply to: oral baclofen posted by Chris M. on January 26, 2000 at 14:41:04:
: Hi, I am the mom to 4 /12 year old Erin. Erin has moderate spastic diplegia. She walks with a walker, talks, (lots of articulation therapy!) and does well. She has not made much prgress in PT lately due to VERY tight hamstrings and adductors. We want to move her to crutches but she is too tight in her legs and doesn't yet have the balance. Her tightness is really slowing her down. Her Drs. have given us a RX for oral baclofen. I dropped it at the store about four months ago but I am afraid to give it to her. Her trunk is a little mushy and I am afraid the med will make it worse. Also, she is so bright and spunky, I want to keep her that way! The idea of such a heavy duty med scares me. I'm afraid she will get groggy. Any experienced parents out there? Would love to hear from you! Please feel free to email me directly.
: Chris firstname.lastname@example.org
I have a 13yr. old son who has been on oral baclofen for 11yrs. It has helped him to relax.
It also makes PT easier. He sleeps better at
night and I believe is more comfortable. However, my child's muscles are verytight all over,
not just legs, and is not able to do much at all
physically. It can make him groggy initially.
My son's drawback experience is that over the years we've had to greatly increase dosage.
I would think you could try the medicine for
a short time to test it without harm and if it's
not working he doesn't have to continue. Ask
Dr. about that and also about botox shots.