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Posted by Lori on March 13, 2000 at 12:32:07:

In Reply to: feeding issues with reflux posted by Mary Rose Rubenacker on March 01, 2000 at 17:31:38:


: Hello. I have a 7 month old son with a G-Tube. He has yet to be diagnosed with CP but after all the research I have done, I am certain that he will be. I am concerned and wondering if there are any parents out there dealing with reflux and getting a child started on oral feedings and what successes you have had. We are working with speech therapists, but it seems to be impossible to find one who specializes in feeding.

:
: It was not recommended at the time the G-Tube was placed that we have the fundaplacation procedure done.

: Thanks in advance to anyone who can share.
Dear Mary Rose,
I am writing in response to your message regarding your child that has reflux and a G-Tube.
I also have a child (4 years old) who has a diagnosis of spastic cp and has reflux along with a g-tube. We have not had the surgery that you are speaking of. We did however have success with a feeding specialist in helping my child learn to eat better by mouth. This perticular therapist was a Occupational Therapist not a speech therapist. If you can contact your areas "first steps" program they should have a listing of providers in your area and it will also list their "specialty". If you are already involved with this organization, you may want to contact a Childrens hospital that would be near your home and ask for their Cp clinic. Sometimes these hospitals can hook you up with a Dr. who specializes in cp (physiatrist) and they might be able to refer you to a feeding specialist.
We have been working with my child now for about 2 years in the area of taking food by mouth. She is a much better eater than 2 years ago. Hopefully we will be able to have the g-tube pulled by the end of this year.
Good luck, feel free to email
Lori

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