Posted by sindi
on March 17, 2000 at 14:55:58:
In Reply to: Re: daughter with ataxic cerebral palsy - therapy? posted by Avery K on November 13, 1999 at 13:28:22:
: : My daughter is now 13 and I was aware that she had seizures at age 3 (her eye lids would flutter and teeth clatter for a few minutes after awakening). At age 5 she had a grand mal seizures so we controlled them with medication. Nothing was said about CP until 3rd grade when she started falling due to an odd gait that she started to have. She is not spastic --but ataxic which causes her to walk with her legs far apart and to have pour sense of balance. When she walks she leans on a wall for balance and this has caused her to develop scoliosis.The doctor doesn't feel that it is bad enough to warrant a brace. My daughter has recently gotten a walker so she can stand upright and not fear falling with every step.
: : ****When she walks her right foot,hip,and shoulder are turned outward which cause her to fall sometimes even with the walker. ?? Does anyone have or know someone with a similar difficulty in walking and are there any therapy or equipment suggestions that my daughter can try to help her turn her foot straight???thanks, Avery
HELLO! I HAVE A 7 1\2 YEAR OLD DAUGHTER WITH ATAXIC CEREBRAL PALSY. SHE HAS NEVER WALKED WITHOUT ASSISTANCE NOR DOES SHE TALK. SHE DOES VOCALIZE AND SAY SOME WORDS (MOMA, BITE EXM..). SHE WAS BORN WITH THE ATAXIA AND I HAVE NEVER BEEN ABLE TO FIND MUCH INFO ON THIS TYPE OF CP. I HAVE HAD ALOT OF HELP THROUGH AN ORAGANIZATION IN MY STATE, GEORGIA, CALLED DISTRICT FOUR HEALTH SERVICES.MAYBE YOUR STATE HAS A PROGRAM THAT COULD HELP. IF NOT YOUR PHYSICAL THERAPIST SHOULD BE ABLE TO RECOMMEND SOMETHING TO HELP.