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Posted by C.M.Beahan on March 19, 2000 at 20:13:50:

In Reply to: Re: Life Expectancy with CP posted by TheGolem on December 21, 1999 at 11:11:07:

: : : What are the general guidelines of life expectancy with very severe CP?

: : My child also had very severe CP. Her CP affected all of her muscles including her breathing. She was non-verbal and totally dependent. She was the love of my life. The local United CP Association and the research I did said that CP cannot cause death. However, we did lose our lovely Audra when she aspirated in her sleep at the age of 12. I encouraage you to pursue all services and medical support you can.
: : Including if necessary suctioning of the lungs and tube feeding to increase your child's weight.
: : Most persons with very severe CP end up dying from
: : pnemonia or related lung disorders. Treasure everyday and God Bless.

: My son who is 36 is beginning to have difficulty breathing and swallowing. What do I do?
: We have scheduled an appointment with a doctor, but most can't tell us much.

I would like to "CHAT" with other parents of youny adult children with profound CP who are displaying these type of deteriation systoms.

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