Posted by LISA STALEY
on April 02, 2000 at 01:59:05:
In Reply to: Re: feeding issues with reflux posted by Lori on March 13, 2000 at 12:32:07:
: : Hello. I have a 7 month old son with a G-Tube. He has yet to be diagnosed with CP but after all the research I have done, I am certain that he will be. I am concerned and wondering if there are any parents out there dealing with reflux and getting a child started on oral feedings and what successes you have had. We are working with speech therapists, but it seems to be impossible to find one who specializes in feeding.
: : It was not recommended at the time the G-Tube was placed that we have the fundaplacation procedure done.
: : Thanks in advance to anyone who can share.
: Dear Mary Rose,
: I am writing in response to your message regarding your child that has reflux and a G-Tube.
: I also have a child (4 years old) who has a diagnosis of spastic cp and has reflux along with a g-tube. We have not had the surgery that you are speaking of. We did however have success with a feeding specialist in helping my child learn to eat better by mouth. This perticular therapist was a Occupational Therapist not a speech therapist. If you can contact your areas "first steps" program they should have a listing of providers in your area and it will also list their "specialty". If you are already involved with this organization, you may want to contact a Childrens hospital that would be near your home and ask for their Cp clinic. Sometimes these hospitals can hook you up with a Dr. who specializes in cp (physiatrist) and they might be able to refer you to a feeding specialist.
: We have been working with my child now for about 2 years in the area of taking food by mouth. She is a much better eater than 2 years ago. Hopefully we will be able to have the g-tube pulled by the end of this year.
: Good luck, feel free to email
MY SON WAS DIAGNOSED WITH REFLUX AT ABOUT 4 MONTHS. HIS WAS NOT AS SEVERE AS YOURS. WE WERE ABLE TO GET HIM EATING. A SPEECH THERAPIST IS GREAT FOR FEEDING PROBLEMS BUT I ENCOURAGE YOU TO GET AN MRI OF THE BRAIN ON YOUR CHILD. EARLY DIAGNOSES OF CP IS IMPORTANT. WITH THE DIAGNOSIS OF CP YOU WILL BE PUT IN TOUGH WITH MANY DIFFERENT TYPES OF THERAPY AND THE EARLIER THE BETTER. MY SON HAD HIS MRI AT 9 MONTHS AND WE STARTED PHYSICAL AND OCCUPATIONAL THERAPY AT THAT TIME. EARLY CHILDHOOD INTERVENTION PROGRAMS ARE GREAT. GOOD LUCK. LISA